Kaasa S, Loge JH, Aapro M, Albreht T, Anderson R, Bruera E, et al. Integration of oncology and palliative care: a lancet oncology commission. Lancet Oncol. 2018;19:e588–653.
Article
PubMed
Google Scholar
NCP, National consensus project – for quality palliative care. Clinical practice Guidelines for Quality of Care. 4th ed; 2017. http://nchpc.conferencespot.org/. Accessed 10 Oct 2020.
Google Scholar
WHO. World Health Organization definition palliative care. 2002. https://www.publichealth.com.ng/who-definition-of-palliative-care/. Accessed 11 June 2021.
Google Scholar
Wenrich MD, Curtis JR, Ambrozy DA, Carline JD, Shannon SE, Ramsey PG. Dying patients’ need for emotional support and personalized care from physicians: perspectives of patients with terminal illness, families, and health care providers. J Pain Symptom Manag. 2003;25:236–46.
Article
Google Scholar
Jones J, Nowels C, Kutner JS, Matlock DD. Shared decision making and the use of a patient decision aid in advanced serious illness: provider and patient perspectives. Health Expect. 2015;18:3236–47.
Article
PubMed
Google Scholar
Klint Å, Bondesson E, Rasmussen BH, Fürst CJ, Schelin MEC. Dying with unrelieved pain-prescription of opioids is not enough. J Pain Symptom Manag. 2019;58:784–91.e1.
Article
Google Scholar
Andersson S, Årestedt K, Lindqvist O, Fürst CJ, Brännström M. Factors associated with symptom relief in end-of-life care in residential care homes: a national register-based study. J Pain Symptom Manag. 2018;55:1304–12.
Article
Google Scholar
Andersson S, Martinsson L, Fürst CJ, Brännström M. End-of-life discussions in residential care homes improves symptom control: a national register study. BMJ Support Palliat Care. 2021. https://doi.org/10.1136/bmjspcare-2021-002983 Online ahead of print.
Curtis JR, Downey L, Back AL, Nielsen EL, Paul S, Lahdya AZ, et al. Effect of a patient and clinician communication-priming intervention on patient-reported goals-of-care discussions between patients with serious illness and clinicians: a randomized clinical trial. JAMA Intern Med. 2018;178:930–40.
Article
PubMed
PubMed Central
Google Scholar
De Vleminck A, Pardon K, Beernaert K, Deschepper R, Houttekier D, Van Audenhove C, et al. Barriers to advance care planning in cancer, heart failure and dementia patients: a focus group study on general practitioners’ views and experiences. PLoS One. 2014;9:e84905.
Article
PubMed
PubMed Central
CAS
Google Scholar
Dunlay SM, Foxen JL, Cole T, Feely MA, Loth AR, Strand JJ, et al. A survey of clinician attitudes and self-reported practices regarding end-of-life care in heart failure. Palliat Med. 2015;29:260–7.
Article
PubMed
Google Scholar
Hjelmfors L, Strömberg A, Friedrichsen M, Mårtensson J, Jaarsma T. Communicating prognosis and end-of-life care to heart failure patients: a survey of heart failure nurses’ perspectives. Eur J Cardiovasc Nurs. 2014;13:152–61.
Article
PubMed
Google Scholar
Lord L, Clark-Carter D, Grove A. The effectiveness of communication-skills training interventions in end-of-life noncancer care in acute hospital-based services: a systematic review. Palliat Support Care. 2016;14:433–44.
Article
PubMed
Google Scholar
Bernacki RE, Block SD. American College of Physicians Hig Value Care Task Force. Communication about serious illness care goals: a review and synthesis of best practices. JAMA. Intern Med. 2014;174:1994–2003.
Google Scholar
Bernacki R, Hutchings M, Vick J, Smith G, Paladino J, Lipsitz S, et al. Development of the serious illness care program: a randomised controlled trial of a palliative care communication intervention. BMJ Open. 2015;5:e009032.
Article
PubMed
PubMed Central
Google Scholar
Lakin JR, Koritsanszky LA, Cunningham R, Maloney FL, Neal BJ, Paladino J, et al. A systematic intervention to improve serious illness communication in primary care. Health Aff (Millwood). 2017;36:1258–64.
Article
Google Scholar
Lakin JR, Benotti E, Paladino J, Henrich N, Sanders J. Interprofessional work in serious illness communication in primary care: a qualitative study. J Palliat Med. 2019;22:751–63.
Article
PubMed
Google Scholar
Geerse OP, Lamas DJ, Sanders JJ, Paladino J, Kavanagh J, Henrich NJ, et al. A qualitative study of serious illness conversations in patients with advanced cancer. J Palliat Med. 2019;22:773–81.
Article
PubMed
Google Scholar
Sanders JJ, Paladino J, Reaves E, Luetke-Stahlman H, Anhang Price R, Lorenz K, et al. Quality measurement of serious illness communication: recommendations for health systems based on findings from a symposium of national experts. J Palliat Med. 2020;23:13–21.
Article
PubMed
Google Scholar
Paladino J, Brannen E, Benotti E, Henrich N, Ritchie C, Sanders J, et al. Implementing serious illness communication processes in primary care: a qualitative study. Am J Hosp Palliat Care. 2021;38:459–66.
Article
PubMed
Google Scholar
Paladino J, Koritsanszky L, Neal BJ, Lakin JR, Kavanagh J, Lipsitz S, et al. Effect of the serious illness care program on health care utilization at the end of life for patients with cancer. J Palliat Med. 2020;23:1365–9.
Article
PubMed
Google Scholar
Paladino J, Koritsanszky L, Nisotel L, Neville BA, Miller K, Sanders J, et al. Patient and clinician experience of a serious illness conversation guide in oncology: a descriptive analysis. Cancer Med. 2020;9:4550–60.
Article
PubMed
PubMed Central
Google Scholar
McGlinchey T, Mason S, Coackley A, Roberts A, Maguire M, Sanders J, et al. Serious illness care Programme UK: assessing the ‘face validity’, applicability and relevance of the serious illness conversation guide for use within the UK health care setting. BMC Health Serv Res. 2019;19:384.
Article
PubMed
PubMed Central
Google Scholar
Paladino J, Bernacki R, Neville BA, Kavanagh J, Miranda SP, Palmor M, et al. Evaluating an intervention to improve communication between oncology clinicians and patients with life-limiting cancer: a cluster randomized clinical trial of the serious illness care program. JAMA Oncol. 2019;5:801–9.
Article
PubMed
Google Scholar
Ma C, Riehm LE, Bernacki R, Paladino J, You JJ. Quality of clinicians’ conversations with patients and families before and after implementation of the serious illness care program in a hospital setting: a retrospective chart review study. CMAJ Open. 2020;8:E448–54.
Article
PubMed
PubMed Central
Google Scholar
Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–57.
Article
PubMed
Google Scholar
Moss AH, Lunney JR, Culp S, Auber M, Kurian S, Rogers J, et al. Prognostic significance of the ‘surprise’ question in cancer patients. J Palliat Med. 2010;13:837–40.
Article
PubMed
Google Scholar
Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15:1277–88.
Article
PubMed
Google Scholar
Weiner BJ. A theory of organizational readiness for change. Implement Sci. 2009;4:67.
Article
PubMed
PubMed Central
Google Scholar
Pasricha V, Gorman D, Laothamatas K, Bhardwaj A, Ganta N, Mikkelsen ME. Use of the serious illness conversation guide to improve communication with surrogates of critically ill patients. A pilot study. ATS Sch. 2020;1:119–33.
Article
PubMed
PubMed Central
Google Scholar
Wallerstedt B, Benzein E, Schildmeijer K, Sandgren A. What is palliative care? Perceptions of healthcare professionals. Scand J Caring Sci. 2019;33:77–84.
Article
PubMed
Google Scholar
Lakin JR, Block SD, Billings JA, Koritsanszky LA, Cunningham R, Wichmann L, et al. Improving communication about serious illness in primary care: a review. JAMA Intern Med. 2016;176:1380–7.
Article
PubMed
Google Scholar
Le K, Lee J, Desai S, Ho A, van Heukelom H. The surprise question and serious illness conversations: a pilot study. Nurs Ethics. 2021;28:1010–25.
Article
PubMed
Google Scholar
Highet G, Crawford D, Murray SA, Boyd K. Development and evaluation of the supportive and palliative care indicators tool (SPICT): a mixed-methods study. BMJ Support Palliat Care. 2014;4:285–90.
Article
PubMed
Google Scholar
Pham L, Arnby M, Benkel I, Dahlqvist Jonsson P, Källstrand J, Molander U, et al. Early integration of palliative care: translation, cross-cultural adaptation and content validity of the supportive and palliative care indicators tool in a Swedish healthcare context. Scand J Caring Sci. 2020;34:762–71.
Article
PubMed
Google Scholar
Alexander Cole C, Wilson E, Nguyen PL, Hazeltine AM, Greer JA, Jacobsen J. Scaling implementation of the serious illness care program through coaching. J Pain Symptom Manag. 2020;60:101–5.
Article
Google Scholar
Williams K, Markwardt S, Kearney SM, Karp JF, Kraemer KL, Park MJ, et al. Addressing implementation challenges to digital care delivery for adults with multiple chronic conditions: stakeholder feedback in a randomized controlled trial. JMIR MHealth UHealth. 2021;9:e23498.
Article
PubMed
PubMed Central
Google Scholar
Nilsen P, Seing I, Ericsson C, Birken SA, Schildmeijer K. Characteristics of successful changes in health care organizations: an interview study with physicians, registered nurses and assistant nurses. BMC Health Serv Res. 2020;20:147.
Article
PubMed
PubMed Central
Google Scholar
Nilsen P, Schildmeijer K, Ericsson C, Seing I, Birken S. Implementation of change in health care in Sweden: a qualitative study of professionals’ change responses. Implement Sci. 2019;14:51.
Article
PubMed
PubMed Central
Google Scholar
Nilsen P, Wallerstedt B, Behm L, Ahlström G. Towards evidence-based palliative care in nursing homes in Sweden: a qualitative study informed by the organizational readiness to change theory. Implement Sci. 2018;13:1.
Article
PubMed
PubMed Central
Google Scholar
Thamcharoen N, Nissaisorakarn P, Cohen RA, Schonberg MA. Serious illness conversations in advanced kidney disease: a mixed-methods implementation study. BMJ Support Palliat Care. 2021. https://doi.org/10.1136/bmjspcare-2020-00283 Online aheqad of print.
Kumar P, Wixon-Genack J, Kavanagh J, Sanders JJ, Paladino J, O’Connor NR. Serious illness conversations with outpatient oncology clinicians: understanding the patient experience. JCO Oncol Pract. 2020;16:e1507–15.
Article
PubMed
Google Scholar
Anderson RJ, Stone PC, Low JTS, Bloch S. Managing uncertainty and references to time in prognostic conversations with family members at the end of life: a conversation analytic study. Palliat Med. 2020;34:896–905.
Article
PubMed
PubMed Central
Google Scholar
Sanders JJ, Curtis JR, Tulsky JA. Achieving goal-concordant care: a conceptual model and approach to measuring serious illness communication and its impact. J Palliat Med. 2018;21:S17–27.
Article
PubMed
Google Scholar
DeCourcey DD, Partin L, Revette A, Bernacki R, Wolfe J. Development of a stakeholder driven serious illness communication program for advance care planning in children, adolescents, and young adults with serious illness. J Pediatr. 2021;229:247–258.e8.
Article
PubMed
Google Scholar
Krueger RA. Analyzing focus group interviews. J Wound Ostomy Continence Nurs. 2006;33:478–81.
Article
PubMed
Google Scholar