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Qualitative perspectives of Medicaid-insured patients on ambulatory care at an academic medical center: challenges and opportunities

Abstract

Background

Ambulatory access to academic medical centers (AMCs) for patients insured with Medi-Cal (i.e., Medicaid in California) is understudied, particularly among the 85% of beneficiaries enrolled in managed care plans. As more AMCs develop partnerships with these plans, data on patient experiences of access to care and quality are needed to guide patient-centered improvements in care delivery.

Methods

The authors conducted semi-structured, qualitative interviews with Medi-Cal-insured patients with initial visits at a large, urban AMC during 2022. Participant recruitment was informed by a database of ambulatory Medi-Cal encounters. The interview guide covered Medi-Cal enrollment, scheduling, and visit experience. Interviews were transcribed and inductively coded, then organized into themes across four domains: access, affordability, patient-provider interactions, and continuity.

Results

Twenty participant interviews were completed (55% female, 85% English speaking, 80% self-identified minority or “other” race, and 30% Hispanic or Latino) with primary and/or specialty care visits. Within the access domain, participants reported delays with Medi-Cal enrollment and access to specialist care or testing, though appointment scheduling was reported to be easy. Affordability concerns included out-of-pocket medical and parking costs, and missed income when patients or families skipped work to facilitate care coordination. Participants considered clear, bilateral communication with providers fundamental to positive patient-provider interactions. Some participants perceived discrimination by providers based on their insurance status. Participants valued continuity, but experienced frustration arising from frequent and unexpected health plan changes that disrupted care with their established AMC providers.

Conclusions

The missions of AMCs typically focus on clinical care, education, research, and equity. However, reports from Medi-Cal insured patients receiving care at AMCs highlight their stress and confusion related to inconsistent provider access, uncompensated costs, variability in perceptions of quality, and fragmented care. Recommendations based upon patient-reported concerns suggest opportunities for AMC health system-level improvements that are compatible with AMC missions.

Peer Review reports

Background

Academic medical centers (AMCs) face renewed pressure to advance health equity, in addition to their long-standing commitments to clinical, educational, and research missions [1, 2]. One patient population that warrants prioritization in equity efforts includes patients insured with Medicaid (i.e., Medi-Cal in California). This cohort, often characterized by a greater share of racially and ethnically minoritized individuals [3], frequently resides near AMCs, but has often been overlooked as an economically marginalized group. By developing strategies informed by patient experiences to improve clinical care delivery across the spectrum of medical and social conditions, patient access could improve. Overcoming insurance barriers could decrease clinician burnout, increase patient satisfaction, and concurrently enhance the educational mission of the AMC by strengthening the knowledge base of its faculty and trainees [4].

In the United States, Medicaid serves as the largest health insurance program by enrollment [3]. In California, Medi-Cal (including the Children’s Health Insurance Program) is the source of health insurance for about one-third of residents [5], with over 85% of enrollees receiving health services through plans associated with managed care organizations (MCOs) [6]. MCOs receive upfront payments from states to deliver services to Medicaid-insured patients, though AMC participation in these networks varies. While AMCs often deliver a substantial portion of inpatient care to Medicaid-insured patients, they provide a smaller portion of ambulatory care to Medicaid-insured patients. Evidence on quality of care for Medicaid-insured patients within AMC ambulatory care is sparse [7,8,9,10].

Existing literature on quality of care for Medicaid-insured patients beyond AMCs points to several challenges despite gains following the passage of the Affordable Care Act. Survey data from Medi-Cal enrollees in California revealed persistent difficulty with timely appointments and other measures of access compared to employer-based insurance [11]. Evidence also suggests that Medicaid beneficiaries have experienced persistent racial and ethnic disparities in outcomes [3, 12, 13], less patient-centered care [14], and longer wait times [15, 16] compared to privately- and Medicare-insured patients. While informative, the majority of these studies rely on claims or survey data, which may lack contextual or nuanced information critical for improving patient-centered care.

Interviews with Medicaid beneficiaries give voice to a rarely heard group vulnerable to health inequities. Their reports may reveal unseen patient-provider issues impacting perceptions of care and unintended consequences of policy on individuals [17]. Research conducted in partnership with Medicaid-insured patients could also help prioritize concerns important to local community members [18, 19]. For example, studies exploring how Medicaid-insured patients choose plans may also inform useful strategies for MCOs that are developing patient communication strategies [20]. However, qualitative work on Medicaid patient experiences is currently limited to conditions, such as substance use disorders [21], contraceptive care [22, 23], and disabilities [17], or to policy assessments in specific geographies [20, 24, 25]. The present work helps fill these knowledge gaps by gathering qualitative experiences of a clinically diverse sample of Medi-Cal patients’ access and quality of care at a large, urban AMC.

Methods

Sampling, and participants

As part of a health system quality improvement project that followed health system changes in contracts with Medi-Cal managed care plans, we sought to learn from Medi-Cal insured patients about their experiences receiving care in an AMC. The protocol of this qualitative descriptive study [26] included a diverse sample across demographic characteristics including age, race, ethnicity, and preferred language of patients newly seeking care at a large, urban AMC.

Our three-step recruitment methodology began with data from a health system-generated list of Medi-Cal encounters of individuals with age (18–64), language (English or Spanish speaking), insurance (any Medi-Cal plan type except emergency-only Medi-Cal), visit type (any except behavioral health, which was excluded given the county’s special behavioral health insurance policies), and date of first scheduled AMC visit after January 1, 2022 (even if not attended to capture individuals with barriers to attending new visits). We specified the participants’ first visit at the AMC to be recent enough that interviews could be conducted while minimizing poor recall and telescoping, but delayed enough to capture follow-up experiences at the AMC. Second, we screened the medical record of each patient to verify the accuracy of participant’s demographic data as presented in the data log. Third, we contacted participants via telephone three times before they were deemed a “non-responder.” Given that this project was part of the AMCs quality improvement efforts, it was deemed exempt by the university Institutional Review Board.

Data collection procedures

Semi-structured interviews were performed via telephone by experienced physician interviewers (MB, JF, DG, and VN) from 8/2022 to 6/2023. Using a prepared guide, interviewers asked open-ended questions, and probed emotional reactions to enrollment, scheduling, check-in at the AMC, and the clinical encounter itself (see Appendix 1 for complete interview guide). The guide was translated into Spanish with probes added to gather language-specific experiences, and subsequently back-translated to English to ensure accuracy by bilingual team members (DG, VN). Participants provided informed consent and received a $50 gift card for participation.

Interviews were audio recorded and transcribed in the participant’s spoken language using NVivo, then de-identified and reviewed for accuracy against the audio recording [27]. Spanish language transcriptions were translated to English by a bilingual team member and checked for content against the original audio to ensure subtleties of the interviews remained [28].

Physicians with training and experience in qualitative research used an inductive approach to code the qualitative data using NVivo software (MB, JF) [27]. After independently reading all transcripts, an initial set of four transcripts were coded together to develop the preliminary coding scheme, using concepts directly derived from transcripts. Discrepancies were reconciled through discussion. Codes that emerged later during the interview period were back-coded to earlier interviews as applicable. Investigators then independently coded the remainder of the interviews. The research team discussed emerging themes from the coded interviews and conducted code sorts to analyze the range of data across participants. We determined data saturation when the narratives and themes of the final interviews resulted in no new experiences. To describe a range of participant experiences and highlight narrative stories, we include vignettes that provide examples of our themes. We do not report frequencies of themes as these data were not intended to create generalizations [29].

Finally, we used a deductive approach to assign themes to broader domains of access and quality, stemming from the characterization of high-quality care as safe, effective, patient-centered, timely, efficient, and equitable [30]. The study team consolidated and redefined these into 4 unique domains that best reflected the salient findings in our analysis. Notably, continuity of care emerged as a distinct concept from our analysis. Throughout this manuscript, we refer to Medi-Cal-insured patients who completed interviews as “participants” rather than “patients” to focus on their lived experiences with care, including unique cultural values and expectations [31], and prioritize participants’ own subjective encounters with Medi-Cal and the AMC across varied health conditions [32]. Below we define the four domains:

  • Access: Experiences securing insurance coverage, initial access to the AMC, timeliness of care, degree of physical, cultural, and linguistic accessibility of visit [33].

  • Affordability: Monetary and non-monetary costs (e.g. time) to patients, family, and the health system [34].

  • Patient-provider interaction: Patient-centeredness of communication, perceptions regarding equity of treatment, and contributors to trusting relationships [35,36,37].

  • Continuity: Ability to continue care within the AMC, experiences of the coordination of clinical services [38], understanding how to obtain recommended follow-up interventions (diagnostics, results, treatments options), and guidance about clinical follow-up.

Results

Participant characteristics

Of 176 patients screened, 45 met eligibility criteria and were contacted; 27 patients answered the recruitment phone call and 20 completed the interview. Mean time from first AMC visit to the interview was 5.2 months and mean interview duration was 30 min. A slight majority (55%) were female, and most (85%) were English-speaking. Most (80%) self-identified as a minority or “other” race and 30% identified as Hispanic or Latino ethnicity (see Table 1). The majority (65%) were assigned to a Medi-Cal MCO during their care. Participants visited a range of clinical disciplines across primary care (40%) and medical or surgical specialty care (60%). For each of the four domains, the text that follows introduces themes and presents one clinical scenario.

Table 1 Characteristics of 20 participants

Access

Theme 1: patient frustration stems from unfamiliar enrollment and MCO plan selection procedures

The majority of participants were new to Medi-Cal. For some, enrollment was uneventful with prompt coverage. Those who were assisted by patient navigators tended to encounter the fewest roadblocks, or were less distressed by them. Prolonged enrollment was associated with initial denials, the need to correct personal information, or difficulty entering a preferred MCO plan (see Table 2).

Table 2 Access domain themes and quotations from qualitative interviews

Many Medi-Cal enrollees reported the available documentation from Medi-Cal did not meaningfully guide them how to select among plans. Material was not readily accessible and participants were distressed after being assigned to plans that were far from home or did not include the providers they perceived to match their needs. Some participants did not realize they would be assigned to an MCO, and first learned of MCO plan assignments during a visit with a staff member at their AMC visit.

Theme 2: health system structures pose challenges to receipt of timely care

Most participants were able to easily schedule an initial appointment at the AMC through its call center. However, the duration from scheduling call to the clinical appointment varied, with longer wait times noted for some specialists. Among participants with long wait times, many expressed understanding, but participants with persistent, unmanaged symptoms were distressed (Table 2).

Theme 3: AMC staff composition and communication portals pose barriers

Among the three Spanish-speaking participants, family members or bilingual office staff often assisted in arranging the appointment. Participants felt the provision of telephonic or video interpreters was effective, but the English-only patient portal was a barrier to self-managing care (Table 2).

Access vignette

Navigating between Medi-Cal and AMC systems posed additional challenges for participants, as illustrated in the following vignette of a woman seeking midwifery care.

She spoke to an insurance specialist at the AMC in an attempt to enroll in one of the AMC’s contracted MCOs. This involved “a lot of following up, and it was a lot of challenges” navigating between the AMC and Medi-Cal’s MCOs. Despite her attentiveness to both the AMC’s and MCO’s suggestions, the MCO ultimately advised her that her MCO was not contracted with the AMC where she had scheduled a prenatal appointment. She recounted “between all that time, my pregnancy was progressing and I didn’t have any care.” Ultimately, she had to switch to a different health system that was contracted with her MCO. She reflected, “I must have Googled like a million things to try to figure this out, and it was just so hard. Like, okay, what plan specifically is covered by Medi-Cal for [the AMC]? It was almost impossible to figure out. And I’m a college grad and realize that if I can’t do it, I can’t imagine anybody else trying to maneuver it.” (Participant 6).

Affordability

Theme 4: participants faced unexpected non-medical and medical costs

While direct healthcare costs were covered for participants, a minority cited ancillary costs such as parking and medications as burdensome, particularly when they were recurrent (see Table 3).

Table 3 Affordability domain themes and quotations from qualitative interviews

Theme 5: support networks contributed uncompensated time to patient care

Participants and their families forfeited needed employment hours and associated wages to make time to contact multiple providers or agencies, clarify insurance plan information, and arrange visits. Many participants relied on family members and friends to assure adequate care coordination, record keeping, and transport.

Affordability vignette

The following case revealed the costs that participants and families absorb in order to implement the specialized care recommended by the AMC.

One participant undergoing liver transplant evaluation described the ways in which the frequent visits (e.g., $15 for parking) amplified out of pocket costs which “start to add up.” Additionally, specific vitamins were “a hundred and something dollars” and not covered by Medi-Cal. He also reported a “family member is taking care of me instead of working. So, it becomes a financial thing when you don’t have a steady stream of income.” Despite these challenges, he spoke positively about his care and was grateful for the services he received. (Participant 12)

Patient-provider interactions

Theme 6: feeling heard by providers was important to participants

Participants expected, and many received, timely, high-quality care from the AMC. Participants appreciated clear explanations, attentiveness, and responsiveness from their clinicians. However, some participants were frustrated, perceiving their concerns to be discounted and unaddressed. One participant, recognizing missed opportunities to ask the doctor questions, blamed himself for not voicing his needs (see Table 4).

Table 4 Patient-provider interaction domain themes and quotations from qualitative interviews

Theme 7: health system interactions contributed to perceived insurance-based discrimination

A subset of participants reported that healthcare experiences at AMCs prompted perceptions of receiving suboptimal treatment due to their having Medi-Cal insurance. Distrust intensified when the AMC to which the patient was referred did not accept their MCO plan (Table 4).

Theme 8: providers discounting participant symptoms strained relationships

Some participants perceived receiving substandard care and wondered whether this was attributable to their having public insurance (Table 4).

Patient-provider interactions vignette

In the following vignette, the participant recalled his care for an ocular injury that left him with distrust of the provider and health system.

During an emergency department visit, a foreign object was removed from his eye and eye drops were administered. He felt the treatment worsened his vision and wondered if a mistake had been made regarding the administered eye drops. During follow up, he was advised to see a cornea specialist. However, he later learned the recommended specialist would not be covered by Medi-Cal, leaving him frustrated and distrustful: “I don’t know why a doctor would tell me that I need to get something from somewhere else where it’s not covered. […] Are you playing games? Are you withholding something?” He wondered whether his treatment and clinical complication had been managed differently due to his having public, rather than private, health insurance. (Participant 11)

Continuity

Theme 9: participants preferred consistency in providers and health systems

Great effort was often made by participants to establish and maintain continuity within the AMC, though success was often outside their control. In some cases, new MCO plans assigned to participants were not contracted with the AMC, and patients were told they could no longer be seen at the AMC. This led to frustration and stress for many, since this required identification of new providers in their networks and often delayed recommended medical care. In a few cases, participants blamed the physician or the AMC for the disruption in care, without recognizing the role managed care physician networks played in the plan assignments (see Table 5).

Table 5 Continuity domain themes and quotations from qualitative interviews

A small minority of participants in this position sought to re-establish their fee-for-service coverage, either due to their own health system knowledge or at the urging of social workers. Participants found advice helpful when received from family, care coordinators, or social workers on navigating this bureaucracy, and participants expressed gratitude that they were able to continue care at the AMC with their existing providers.

Theme 10: participants experienced fragmented services, though care coordination strategies, when available, improved experiences

Participants were often not advised that the ancillary service recommended to them may require a special authorization. Such advice was most likely to be needed if the MCO with which they were contracted did not cover the services they required (e.g., a particular type of imaging study) at their local AMC site. Without awareness of the need for a special authorization, participants often were distressed to learn that their needed test was delayed or missed. Furthermore, patients were sometimes billed for exams they felt should have been paid by insurance. The inherent complexity of large health systems, with multiple sites for ancillary services like imaging (some covered by their insurance and some not), was often difficult to navigate (Table 5).

Care coordination services eased this challenge and improved the patient’s experience with the AMC. Participants in specific clinical programs, such as trauma, liver transplant, and oncology were more likely than others to receive case management from AMC staff.

Continuity vignette

The vignette below describes how one participant experienced care that left her feeling abandoned by her care team.

A participant who recently established primary care at the AMC newly developed significant vaginal bleeding. This prompted a visit to the AMC’s emergency department, where she received iron infusions and oral medications. When her bleeding persisted, she called her primary care office, who advised her that she had been assigned to an MCO, and the AMC “no longer took her insurance.” After being directed to visit a county hospital for care, this patient reported feeling that the AMC was “judging [her] on the type of insurance [she] had”. She described feeling significant distress and felt the physician was “negligent” for referring her to a different institution. (Participant 9)

Discussion

Through qualitative interviews with Medi-Cal insured patients, we explored health system perceptions across four domains of quality including access, affordability, patient-provider interactions, and continuity [30]. These domains readily emerged as central themes during our data analysis. We found that the complexity of care delivery for Medi-Cal insured patients at the AMC often created obstacles to participants’ care access. While participants had high regard for the care at the AMC, they also reported affordability concerns, including unexpected costs and family support required for participants to fully engage in care. Participants felt providers delivered the highest quality care when their autonomy was respected and communication was clear; whereas, when they had unaddressed concerns or providers referenced coverage limitations, they felt distrust within their patient-provider interactions. Lastly, continuity within the system was highly valued, but often not experienced. Altogether, this work highlights opportunities for AMCs to improve care delivery across ambulatory care disciplines for economically marginalized patients with Medi-Cal insurance.

While many studies show that access to care improves for those enrolled in Medicaid compared with the uninsured [39, 40], AMCs could benefit from further understanding of patient experiences and challenges navigating care to improve processes. While our participants revealed many positive enrollment experiences, the interviews also revealed negative emotional impacts of navigating nuances of Medi-Cal. Some participants also received conflicting or incomplete information from the AMC, the state Medi-Cal office, or the MCO regarding whether their plan networks would include the AMC. Fortunately, for many, health plan-related challenges often diminished with the passage of time and acclimation to the AMC and Medi-Cal program. This was especially notable among participants receiving care within clinical programs with embedded case management resources (i.e. trauma surgery, transplant, oncology), and for those receiving advice or support by social workers or nurse navigators.

To address insurance-related challenges, many participants employed their own time (often resulting in missed wages), self-advocacy, or family member’s time and resources to learn how to access and maintain their care within the AMC. Participants often described intense additional burden and stress involved in navigating the system, which was variably effective. Successful navigation was not consistently aligned with participants’ burden of illness, primary language, or demographics. Instead, successful navigation frequently depended on family or participant awareness of how the AMC and Medi-Cal systems administer care, and their understanding of the increasingly complex and fragmented US health system.

How well patients navigate complex US health systems is an area of increasing concern. Healthy People 2030 [41] defines health literacy to include the degree to which health organizations deliver understandable health information. They emphasize the importance of health organizations communicating clearly on the scope of health plan coverage and easing access to navigation services [42]. Our participants report experiences receiving care in organizations not consistently providing such clarity. Examples included receiving conflicting information between agencies, inability to clarify health plan coverage from the MCO or the AMC, and confusion when they were told they could no longer continue AMC care due to changes in their plan networks.

AMCs and Medi-Cal organizations share responsibility for proactively developing easier to navigate systems that use clear language that anyone can understand, regardless of their own health literacy. The goal of this concept, known as health literacy universal precautions, is to provide transparent, accurate, and accessible information to guide all patients, thus providing potential benefits to those challenged by health system complexities [41]. California’s state-level transformational efforts to enhance care management with additional coordination and community supports for high-need members across the state provides one model for this approach through California Advancing and Innovating Medi-Cal (CalAIM) [43, 44].

Given the multiple systems involved in delivering healthcare to Medi-Cal patients, solutions to improve patient navigation within Medi-Cal are also needed within individual AMCs and MCO health plans. Within AMCs, a team of case managers specifically designated to assist Medi-Cal-insured patients with access, quality, and social determinants of health concerns could leverage their experiences with diverse patients insured with Medi-Cal to systematically catalogue challenges and successful solutions. Next, MCO efforts to clearly specify the terms of their service contracts with transparent, comprehensive, and current material regarding disease-related, geographic, continuity, and fiscal concerns would allow AMCs and patients to make informed decisions about their care. This could be most effective if MCOs shared this material with both AMCs and patients to ensure streamlined, consistent information.

While historically AMCs have been known for their strength in delivering complex tertiary and quaternary care inpatient services, including to publicly insured individuals, access to comprehensive ambulatory care at AMCs is variable [7, 45]. Since AMC health systems commonly have a high density of specialists [46], Medicaid-insured patients with conditions requiring specialist consultation could benefit from process improvements between AMCs and MCOs, such as streamlined referral processing and health information sharing. Expanding partnerships between AMCs and Medicaid managed care can enhance the equity, education, diversity, and clinical missions of AMCs while improving patient access and outcomes. This has been suggested as a reason for AMCs to include more Medicaid ambulatory patients within their practices.

  • From an equity perspective, Medicaid patients should be able to access comprehensive care and to benefit from continuity of care particularly within state-funded institutions such as AMCs [47, 48]. Innovation is needed to optimize care coordination for Medicaid-insured patients receiving primary and specialty care at AMCs and also for those referred from outside health systems to AMCs for episode-specific care [49]. New information technologies highlight opportunities for health systems to efficiently exchange administrative and clinical information across care settings while maintaining patient privacy [50].

  • Considering the AMC educational mission, participants valued continuity of their care, including instances when trainees were often core members of the team. Resident trainees exposed to the system navigation, medical, and social challenges of their Medi-Cal-insured patients may enhance their motivation to participate in the Medicaid program in the future [51].

  • As efforts to expand medical student diversity evolve, more trainees prioritize serving racially and ethnically minoritized patients, who are over-represented in the Medicaid population, during residency and beyond [52].

  • Patients’ preferences for ambulatory AMC care should be respected, though this will require expansion of AMC ambulatory care services for patients receiving public assistance. Solutions for implementing AMC partnerships with MCOs may ultimately depend on the local health systems and patient populations that vary across Medicaid markets and geographies.

Our study within a single AMC sought to highlight how the AMC mission intersects with Medi-Cal patient needs. A strength of this analysis is its presentation of patient’s description of their lived experiences as Medi-Cal-insured patients seeking care within an AMC. Patient reports of concerns about care fragmentation, unanticipated costs, under and over referrals, and feeling unheard are not unique to Medicaid patients or unique to their receipt of care at an AMC. We highlight the voices of these patients because the literature consistently references challenges patients with Medicaid have maintaining consistent primary care coordination [53], accessing timely specialty services [54], and feeling their needs are being met with cultural humility [14]. Additionally, while AMCs traditionally were situated in urban centers in close geographic proximity to diverse populations, increasingly they have been expanding to more affluent areas [55]. As a consequence, individuals from communities with lower financial resources may have less exposure to AMCs and the mix of generalist and specialist opportunities they provide. Disparities in the delivery of health care services at AMCs can be mitigated when patients with Medicaid insurance, along with other insurance types, have the opportunity to receive care at AMCs. As a large academic center with a cohort of highly trained experts and trainees spanning disciplines, most AMCs offer the opportunity for diverse patients and provider teams to work together to address a plethora of medical and surgical conditions while also considering social and economic challenges associated with complex conditions.

Our findings build on existing understandings of affordability in healthcare. Our participants mainly relied on cars for appointment travel, and several mentioned repeated parking costs as distressing. To put $15 parking fees in context, patients earning the maximum individual income to qualify for Medi-Cal (138% of the federal poverty level) must pay nearly 4% of their weekly gross income for each visit, before accounting for mileage and other costs. Participants did not discuss alternatives such as public transportation or rides provided by insurers, though these options may be perceived as unsafe, time-consuming, or unreliable [56]. Further research could illuminate whether these alternative transit options are known among and available to Medicaid beneficiaries. In addition, while families serving as informal caregivers is acknowledged in the Medicaid literature [57, 58], this study uniquely shares the need for supports among younger, working Medicaid cohorts.

Our study has limitations. The recruitment was limited to English and Spanish speaking participants. Our findings reflect a single institution in a large city with a diverse healthcare market and our findings may not transfer to health systems in other geographies with different populations or Medicaid programs. Nevertheless, our study site may share commonalities with other AMCs, and adds to the literature describing factors influencing patients to seek AMC care [59]. Participants agreeing to be interviewed may be biased more negatively or positively than average Medi-Cal-insured patients, though our recruitment strategy was designed to minimize biases from referral or snowball sampling. Despite these limitations, we were able to recruit a sample that was varied across age, race, ethnicity, preferred spoken language, Medi-Cal plan, and clinical departments to maximize the range of experiences within the data.

Conclusions

We explored the experiences of Medi-Cal patients seeking care at an AMC across several quality domains of access, affordability, patient-provider interactions, and continuity. We found that system-level complexity and insurance constraints were barriers to accessing care, as were unexpected costs and the need for family and social support in care navigation. While our participants relayed a positive regard and desire for care at the AMC, our analyses have revealed new opportunities to improve communication with providers and patient understanding of access limitations related to contracting between health systems. Altogether, this work highlights opportunities for AMCs to improve ambulatory care delivery for economically marginalized patients with Medi-Cal.

Availability of data and materials

The datasets used and/or analysed during the current study are available from the corresponding author on reasonable request.

Abbreviations

AMC:

Academic medical center

CalAIM:

California Advancing and Innovating Medi-Cal

MCO:

Medi-Cal managed care organization

MRI:

Magnetic resonance imaging

SD:

Standard deviation

References

  1. Farrell TW, Greer AG, Bennie S, Hageman H, Pfeifle A. Academic Health Centers and the Quintuple Aim of Health Care. Acad Med. 2023;98(5):563.

    Article  PubMed  Google Scholar 

  2. Park B, Frank B, Likumahuwa-Ackman S, Brodt E, Gibbs BK, Hofkamp H, et al. Health Equity and the tripartite mission: Moving from Academic Health Centers to academic–Community Health systems. Acad Med. 2019;94(9):1276.

    Article  PubMed  Google Scholar 

  3. Donohue JM, Cole ES, James CV, Jarlenski M, Michener JD, Roberts ET. The US Medicaid Program: Coverage, Financing, reforms, and implications for Health Equity. JAMA. 2022;328(11):1085–99.

    Article  PubMed  Google Scholar 

  4. Dzeng E, Wachter RM. Ethics in Conflict: Moral Distress as a Root cause of Burnout. J Gen Intern Med. 2020;35(2):409–11.

    Article  PubMed  Google Scholar 

  5. Centers for Medicare & Medicaid Services. Medicaid.gov. [cited 2023 Sep 15]. Medicaid & CHIP in California. Available from: https://www.medicaid.gov/state-overviews/stateprofile.html?state=California.

  6. Finocchio L, Paci J, Newman M. Medi-Cal Facts and Figures – 2021 Edition. California Health Care Foundation; [cited 2023 Sep 15]. California Health Care Almanac). Available from: https://www.chcf.org/publication/2021-edition-medi-cal-facts-figures/.

  7. Retchin SM, Xu WY. Medicaid Innovations and the Role of Academic Health Centers. Acad Med. 2018;93(10):1454.

    Article  PubMed  Google Scholar 

  8. Access of Medicaid Recipients to Outpatient Care. N Engl J Med. 1994;330(20):1426–30.

    Article  Google Scholar 

  9. Miller S, Wherry LR. Health and Access to care during the First 2 years of the ACA Medicaid expansions. N Engl J Med. 2017;376(10):947–56.

    Article  PubMed  Google Scholar 

  10. Benko LB. Leaky umbrella: Medi-Cal patients fight for access to care, physicians, new studies show. Mod Healthc. 2003;33(25):34–34.

    PubMed  Google Scholar 

  11. Babey SH, Ponce NA, Becker T, Rasmussen PW, Scheitler AJ. How has Access to care for Medi-Cal enrollees fared relative to Employer-Sponsored Insurance 4 years after the Affordable Care Act expansion? J Gen Intern Med. 2022;37(13):3338–45.

    Article  PubMed  PubMed Central  Google Scholar 

  12. Weech-Maldonado R, Elliott MN, Morales LS, Spritzer K, Marshall GN, Hays RD. Health Plan effects on patient assessments of Medicaid Managed Care among Racial/Ethnic minorities. J Gen Intern Med. 2004;19(2):136–45.

    Article  PubMed  PubMed Central  Google Scholar 

  13. Harawa NT, Tan D, Leibowitz AA. Disparities in uptake of HIV Pre-exposure Prophylaxis among California Medicaid enrollees. Health Aff (Millwood). 2022;41(3):360–7.

    Article  PubMed  Google Scholar 

  14. Ghabowen IK, Bhandari N. Concordance and patient-centered care in Medicaid enrollees’ Care Experience with providers. J Patient Exp. 2021;8:23743735211034028.

    PubMed  PubMed Central  Google Scholar 

  15. Creadore A, Desai S, Li SJ, Lee KJ, Bui ATN, Villa-Ruiz C, et al. Insurance Acceptance, Appointment wait Time, and Dermatologist Access Across practice types in the US. JAMA Dermatol. 2021;157(2):181.

    Article  PubMed  Google Scholar 

  16. Oostrom T, Einav L, Finkelstein A. Outpatient Office Wait Times and Quality of Care for Medicaid patients. Health Aff (Millwood). 2017;36(5):826–32.

    Article  PubMed  Google Scholar 

  17. Bowers A, Owen R, Heller T. Managed Care experiences of Medicaid enrollees with disabilities: a qualitative analysis of consumer survey responses. J Health Care Poor Underserved. 2019;30(2):968–85.

    Article  PubMed  Google Scholar 

  18. Himmelstein J, Bindman AB. Advancing the University Mission through Partnerships with State Medicaid Programs. Acad Med. 2013;88(11):1606.

    Article  PubMed  Google Scholar 

  19. Byhoff E, Taylor LA. Massachusetts Community-Based Organization Perspectives on Medicaid Redesign. Am J Prev Med. 2019;57(6, Supplement 1):S74-81.

    Article  PubMed  PubMed Central  Google Scholar 

  20. Walsh MF, Fitzgerald MP. Health Care Reform through the eyes of patients: a qualitative look at Medicaid Redesign. Health Mark Q. 2012;29(1):18–34.

    Article  PubMed  Google Scholar 

  21. Zhen-Duan J, Fukuda M, DeJonckheere M, Falgas-Bagué I, Miyawaki S, Khazi P, et al. Ensuring access to high-quality substance use disorder treatment for Medicaid enrollees: a qualitative study of diverse stakeholders’ perspectives. J Subst Abuse Treat. 2021;129:108511.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  22. Yates L, Birken S, Thompson TA, Stuart GS, Greene S, Hassmiller Lich K, et al. A qualitative analysis of Medicaid beneficiaries perceptions of prenatal and immediate postpartum contraception counseling. Womens Health. 2022;18:17455057221124079.

    CAS  Google Scholar 

  23. Frohwirth L, Kavanaugh ML, Douglas-Hall A, MacFarlane K, Beavin C. Access to Preferred Contraceptive Strategies in Iowa: a longitudinal qualitative study of effects of shifts in Policy and Healthcare contexts. J Health Care Poor Underserved. 2022;33(3):1494–518.

    Article  PubMed  Google Scholar 

  24. Zimmer RP, Hanchate AD, Palakshappa D, Aguilar A, Wiseman K, Crotts CI et al. Perceptions of North Carolina’s Medicaid Transformation: A Qualitative Study. N C Med J. 2023;85(6). [cited 2023 Sep 14]. https://ncmedicaljournal.com/article/83956-perceptions-of-north-carolina-s-medicaid-transformation-a-qualitative-study.

  25. Abraham TH, McBain SA, Goudie A, Hudson T, Thompson JW. It’s been like a miracle: low-income arkansans and access to health care services following Medicaid reform. Inq J Health Care Organ Provis Financ. 2020;57:004695802098116.

    Google Scholar 

  26. Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–40.

    Article  CAS  PubMed  Google Scholar 

  27. Nvivo. QSR International Pty Ltd. 2020. Available from: https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home.

  28. Temple B, Young A. Qualitative Research and translation dilemmas. Qual Res. 2004;4(2):161–78.

    Article  Google Scholar 

  29. Neale J, Miller P, West R. Reporting quantitative information in qualitative research: guidance for authors and reviewers: Editorial note. Addiction. 2014;109(2):175–6.

    Article  PubMed  Google Scholar 

  30. Institute of Medicine (US) Committee on Quality of Health Care in America. Crossing the Quality Chasm: A New Health System for the 21st Century. Washington (DC): National Academies Press (US). 2001. [cited 2022 Aug 10]. http://www.ncbi.nlm.nih.gov/books/NBK222274/.

  31. Armour M, Rivaux SL, Bell H. Using context to Build Rigor: application to two Hermeneutic Phenomenological studies. Qual Soc Work. 2009;8(1):101–22.

    Article  Google Scholar 

  32. Flores G. Culture and the patient-physician relationship: achieving cultural competency in health care. J Pediatr. 2000;136(1):14–23.

    Article  CAS  PubMed  Google Scholar 

  33. Levesque JF, Harris MF, Russell G. Patient-centred access to health care: conceptualising access at the interface of health systems and populations. Int J Equity Health. 2013;12:18.

    Article  PubMed  PubMed Central  Google Scholar 

  34. Burns M, Shah N, Smith M. Why some disabled adults in Medicaid Face large Out-Of-Pocket expenses. Health Aff (Millwood). 2010;29(8):1517–22.

    Article  PubMed  Google Scholar 

  35. Zeh S, Christalle E, Zill JM, Härter M, Block A, Scholl I. What do patients expect? Assessing patient-centredness from the patients’ perspective: an interview study. BMJ Open. 2021;11(7):e047810.

    Article  PubMed  PubMed Central  Google Scholar 

  36. Mattarozzi K, Sfrisi F, Caniglia F, De Palma A, Martoni M. What patients’ complaints and praise tell the health practitioner: implications for health care quality. A qualitative research study. Int J Qual Health Care. 2017;29(1):83–9.

    PubMed  Google Scholar 

  37. Bhandari N, Shi Y, Jung K. Patient experience of Provider Refusal of Medicaid Coverage and its implications. J Health Care Poor Underserved. 2016;27(2):479–94.

    Article  PubMed  Google Scholar 

  38. Haggerty JL, Reid RJ, Freeman GK, Starfield BH, Adair CE, McKendry R. Continuity of care: a multidisciplinary review. BMJ. 2003;327(7425):1219–21.

    Article  PubMed  PubMed Central  Google Scholar 

  39. Kirby JB, Vistnes JP. Access to care Improved for people who gained Medicaid or Marketplace Coverage in 2014. Health Aff (Millwood). 2016;35(10):1830–4.

    Article  PubMed  Google Scholar 

  40. Long SK, Stockley K, Grimm E, Coyer C, Institute U. National Findings on Access to Health Care and Service Use for Non-elderly Adults Enrolled in Medicaid, Medicaid, Payment CHIP, and Access Commission (MACPAC). 2012. [cited 2024 Jan 25]. https://www.macpac.gov/wp-content/uploads/2012/06/National-Findings-on-Access-to-Health-Care-and-Service-Use-for-Non-elderly-Adults-Enrolled-in-Medicaid.pdf.

  41. Brach C, Harris LM. Healthy People 2030 Health Literacy Definition Tells Organizations: make information and services Easy to find, understand, and use. J Gen Intern Med. 2021;36(4):1084–5.

    Article  PubMed  PubMed Central  Google Scholar 

  42. Ten Attributes of Health Literate. Health Care Organizations. [cited 2023 Oct 5]. https://www.ahrq.gov/health-literacy/publications/ten-attributes.html.

  43. Crumley D, Brykman K, Ralls M, Launching. CalAIM: 10 Observations About Enhanced Care Management and Community Supports So Far. [cited 2024 Jan 21]; https://www.chcf.org/publication/launching-calaim-10-observations-ecm-community-supports.

  44. Services D, of HC. Enhanced Care Management and Community Supports. [cited 2023 Sep 27]. https://www.dhcs.ca.gov/CalAIM/ECM/Pages/Home.aspx.

  45. Henderson MC, Kizer KW, Kravitz RL. Academic Health Centers and Medicaid: advance or retreat? Acad Med. 2018;93(10):1450.

    Article  PubMed  Google Scholar 

  46. Machta RM, Reschovsky D, Jones J, Kimmey DJ, Furukawa L, Rich MF. Health system integration with physician specialties varies across markets and system types. Health Serv Res. 2020;55(S3):1062–72.

    Article  PubMed  PubMed Central  Google Scholar 

  47. Van Walraven C, Oake N, Jennings A, Forster AJ. The association between continuity of care and outcomes: a systematic and critical review. J Eval Clin Pract. 2010;16(5):947–56.

    Article  PubMed  Google Scholar 

  48. Bartolone P. California’s Public Hospitals Face New Medi-Cal Mandate. California Healthline. 2016. [cited 2023 Nov 7]; https://californiahealthline.org/news/californias-public-hospitals-face-new-medi-cal-mandate/.

  49. Wolfson BJ, Twitter, Email P, Los Angeles Times. In California, layers of subcontracted services frustrate Medi-Cal patients.  2021. [cited 2022 May 4]. https://www.latimes.com/california/story/2021-12-21/california-subcontracted-services-confuse-medi-cal-patients.

  50. Ross MK, Sanz J, Tep B, Follett R, Soohoo SL, Bell DS. Accuracy of an Electronic Health Record patient linkage Module evaluated between Neighboring Academic Health Care Centers. Appl Clin Inf. 2020;11(5):725–32.

    Article  Google Scholar 

  51. O’Connell TF, Ham SA, Hart TG, Curlin FA, Yoon JD. A National Longitudinal Survey of Medical Students’ intentions to practice among the Underserved. Acad Med J Assoc Am Med Coll. 2018;93(1):90–7.

    Article  Google Scholar 

  52. Mensah MO, Sommers BD. The policy argument for Healthcare Workforce Diversity. J Gen Intern Med. 2016;31(11):1369–72.

    Article  PubMed  PubMed Central  Google Scholar 

  53. Gordon SH, Gadbois EA, Shield RR, Vivier PM, Ndumele CD, Trivedi AN. Qualitative perspectives of primary care providers who treat Medicaid managed care patients. BMC Health Serv Res. 2018;18(1):728.

    Article  PubMed  PubMed Central  Google Scholar 

  54. Alcalá HE, Roby DH, Grande DT, McKenna RM, Ortega AN. Insurance Type and Access to Health Care providers and appointments under the Affordable Care Act. Med Care. 2018;56(2):186–92.

    Article  PubMed  Google Scholar 

  55. Carrier ER, Dowling M, Berenson RA. Hospitals’ Geographic Expansion in Quest of well-insured patients: will the Outcome be Better Care, more cost. Or both? Health Aff (Millwood). 2012;31(4):827–35.

    Article  PubMed  Google Scholar 

  56. Eisenberg Y, Owen R, Crabb C, Morales M. Rideshare transportation to health care: evidence from a Medicaid implementation. Am J Manag Care. 2020;26(9):e276–81.

    Article  PubMed  Google Scholar 

  57. Crabb C, Owen R, Stober K, Heller T. Longitudinal appraisals of family caregiving for people with disabilities enrolled in Medicaid managed care. Disabil Rehabil. 2020;42(16):2287–94.

    Article  PubMed  Google Scholar 

  58. Wolff JL, Spillman BC, Freedman VA, Kasper JD. A National Profile of Family and unpaid caregivers who assist older adults with Health Care activities. JAMA Intern Med. 2016;176(3):372–9.

    Article  PubMed  PubMed Central  Google Scholar 

  59. Heisler M, DeMonner SM, Billi JE, Hayward RA. Medicaid Managed Care: are Academic Medical centers penalized by attracting patients with high-cost conditions? Am J Manag CARE. 2003;9(1):19–29.

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Acknowledgements

The authors wish to thank Georgie de Mattos and Elise Hayes for administrative support.

Funding

Dr. Blegen and Dr. Faiz were supported by the Veterans Affairs Office of Academic Affiliations through the National Clinician Scholars Program. The views expressed in this article are those of the authors and do not necessarily reflect the position or policy of the US Department of Veterans Affairs, the US government, other affiliated institutions. Following completion of this research, Dr Kahn began a funded evaluation of California’s new plan to transform the state’s Medi-Cal program to better address access for California’s Medicaid-insured patients that is unrelated to the present study. These entities played no role in the study design, manuscript writing, or data collection, analysis, or interpretation.

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Authors

Contributions

MBB and JF contributed equally to this paper. MBB and JF conceptualized the study. JF developed the interview guide and led project management. JF, MBB, VN, DG conducted qualitative interviews. MBB, JF, and KK analyzed data and interpreted findings. MBB drafted the manuscript. MBM contributed to conceptualization of the study and provided analytic feedback. GR provided methodological support. KK additionally provided oversight, methodological support, and substantive editorial feedback. All authors read and approved the final manuscript.

Corresponding author

Correspondence to Mariah B. Blegen.

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As this study was part of a quality improvement project as defined by the UCLA Institutional Review Board (IRB), it was exempt from IRB review and official approval was not required. All study participants provided informed consent to participate.

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Not applicable.

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The authors declare no competing interests.

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Blegen, M.B., Faiz, J., Gonzalez, D. et al. Qualitative perspectives of Medicaid-insured patients on ambulatory care at an academic medical center: challenges and opportunities. BMC Health Serv Res 24, 1139 (2024). https://doi.org/10.1186/s12913-024-11619-3

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