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Table 2 Study design/source type, objectives, key conclusions of reviewed sources

From: Transitions in mental health and addiction care for youth and their families: a scoping review of needs, barriers, and facilitators

Author

Year

Country

Study Design/Source Type

Objective

Key Conclusions

Abidi

2017

Canada

Perspective/Commentary

Consider causes behind the divide between child and adult mental health systems, and outline initiatives attempting to bridge the gaps in service provision for TAY.

Need commitment from all stakeholders; adolescent brain education; transparent early preparation approach; continuous evaluation; elimination of policy-practice gap; and cease determining readiness by age

Appleton

2011

UK

Guide

Facilitate development of mental health services for youth.

N/A

Arcelus

2008

UK

Retrospective

Compare TAY with eating disorders new to treatment vs. previously treated in CAMHS.

Identified relationship between inpatient admission and low self-esteem, maturational issues

Belling

2014

UK

Qualitative

Explore professional perspectives on the barriers and facilitators for CAMHS-AMHS transitions.

Lack of understanding, restrictive criteria, lack of resources all negatively impact CAMHS-AMHS transition and create inequalities

Birleson

2001

Australia

Perspective

Commentary supporting the linkage of child and adolescent psychiatry, opposing separate youth mental health programs, and assessing how AMHS can support youth.

- Need to strengthen link between CAMHS and AMHS

- Service improvement needed for MH care in TAY

- Leaders must take responsibility for closing gaps

Bruce

2008

UK

Literature review

Discuss the gap between child and mental health services and suggest ways to bridge it.

Gap can be reduced through collaboration, clearer protocols, and greater understanding between systems

Butterly

2015

Ireland

Perspective

Commentary on a personal experience of transition from child to adult mental health services

Lived experience should be clearly communicated and may have impact on MH services

Cappelli

2014

Canada

Quantitative

Examine effectiveness of a transition program based on the shared management model.

Shared management model successfully promotes continuity of care during transitions

Children’s Mental Health Ontario

2013

Canada

Literature Review

N/A

N/A

Cleverley

2018

Canada

Literature review

Identify facilitators of CAMHS-AMHS transitions.

Need to create integrated pathways and care coordination to improve transitions promote youth and family engagement

Davidson

2011

Canada

Policy

Examine literature on CAMHS-AMHS transitions, identify evidence for successful transitions, engage stakeholders, and compile knowledge for recommendations on CAMHS-AMHS care approach.

N/A

Davis

2002

USA

Report

Describe findings from a survey of experiences of youth and families when transitioning from child to adult mental health services.

Recommendations include improve transition supports, involve all stakeholders, review practices/policies, create anti-stigma campaigns, and research parents’ perspectives.

Davis

2009

USA

Book Chapter

N/A

Need for research on currently available services, examination on family involvement during transitions, and evaluation of stakeholder knowledge on TAY strengths/needs

Dimitropoulos

2012

Canada

Qualitative

Understand factors/issues/challenges that affect transitions from pediatric to adult eating disorder programs.

- Illness may contribute to disengagement from service and disruption in development; parental involvement reduced during transitions

- Future research: larger qualitative study, longitudinal studies, RCTs

Dimitropoulos

2013

Canada

Qualitative

Obtain clinician perceptions on barriers/facilitators for effective transitions from pediatric to adult eating disorder program.

Transition should be based on readiness; need to develop model of shared care

Dimitropoulos

2015 (1)

Canada

Qualitative

Explore experiences of youth with eating disorders who transferred from pediatric to adult care services, specifically focusing on perceptions of parental supports during transitions.

- transitions create conflict between patients and families regarding illness and issues related to emerging adulthood

- youth note family can play important role

- need to better prepare youth and families for transitions

Dimitropoulos

2015 (2)

Canada

Qualitative

Examine youth experiences of transitions from pediatric to adult eating disorder programs.

- Need to research how experiences differ among diverse communities

- Recommendations to teach life skills and build collaboration between youth and providers

Dowdney

2014

UK

Book chapter

Explore continuities and discontinuities in care in various health care systems.

N/A

Dunn

2017

UK

Participatory

Describe how a CAMHS Transition Preparation Program was produced.

Methods used were favourable among young people; transition preparation program should include from youth and providers to be engaging and relevant

Embrett

2016

Canada

Literature review

Examine literature that assesses existing services for CAMHS-AMHS transitions

Need for better planned transition with collaboration between systems; barriers disrupt flow of transition

Evidence Exchange Network for Mental Health and Addictions

2016

Canada

Literature Review

Describe evidence on mental health strategies for TAY.

TAY need integrated system that includes promotion and prevention services

Garland

2019

USA

Case Study

Provide context and clinical considerations for facilitating transition into adult mental health care.

Highlights need for transition planning and overlapping care; eating disorders best addressed with an inter-professional team

Gilmer

2012

USA

Qualitative

Assess needs/barriers for TAY in youth-specific programs.

Improvement needed in TAY service provision; highlights challenges TAY face when trying to access services

Health Outcomes International

2017

Australia

Environmental analysis

N/A

N/A

Hovish

2012

UK

Qualitative

Explore experiences of CAMHS users, parents, and professionals on CAMHS-AMHS transitions.

Need to address delayed implementation of youth recommendations despite relevance

Jivanjee

2011

USA

Qualitative

Examine focus group data from a larger study on experiences of receiving mental health supports and how they facilitate community integration.

Fragmented system full of challenges; suggests peer support for TAY and parents; need for youth/family collaboration and engagement in treatment and research

Joint Commissioning Panel for Mental Health

2013

UK

Guide

Describe what modern transition services should look like.

N/A

Koroloff

1990

USA

Policy

Examine how policy can streamline transition services.

Need for system-level change; youth face fragmented, challenging, inaccessible services

Lamb

2013

UK

Perspective

Commentary on the complexities involved in improving mental health services for youth.

Need for CAMHS-AMHS collaboration; there is no single solution to improve transitions

Lambert

2014

UK

Perspective

Share findings from Peer Support Worker pilot project, which aimed to improve youth experiences through CAMHS-AMHS transitions.

PSW involvement in CAMHS successful

Leavey

2019

UK

Retrospective

Evaluate progression through services and associated outcomes, and examine how social aspects of family predict transition outcomes.

Need for engagement and seamless transition

Lindgren

2013

Sweden

Qualitative

Examine experiences of professionals on CAP-GenP transitions.

Need for transition planning, provision of information, and cooperation between CAP-GenP

Lindgren

2014

Sweden

Qualitative

Explore experiences of young adults and relatives on CAP-GenP transitions.

Need for person-centred planning, consideration of developmental needs; flexibility in transition timing; CAP-GenP joint working

Loos

2018 (1)

Germany

Qualitative

Examine experiences of TAY service utilization.

Need for staff training on establishing meaningful relationships with TAY; need for interventions to help cope with stigmatizing experiences

Loos

2018 (2)

Germany

Qualitative

Examine experiences of professionals in CAMHS and AMHS through group discussions.

Need for patient-centred care; need for stable relationships to promote youth engagement; highlights lack of flexibility that contributes to sub-optimal transitions

Mandarino

2014

USA

Literature review

Examine barriers faced by TAY when accessing supports external to the child mental health system.

Need for TAY voice in research; policy leaders must be made aware of issues so services can be improved upon

Manuel

2018

USA

Qualitative

Explore MH service provider perspectives on the strategies needed to address TAY needs

Need to acknowledge unique TAY needs to improve transition

McDougall

2014

UK

Book Chapter

N/A

Need to involve both systems to improve transition outcomes

McGorry

2007

Australia

Perspective

N/A

Need for state-level, evidence-informed model development

McGrandles

2012

Scotland

Literature review

Identify key issues in CAMHS-AMHS transitions.

Nurses could play important role during transitions; need for provider-patient collaboration for successful transition and consideration of developmental needs

McLaren

2013

UK

Qualitative

Explore professional perspectives of the barriers and facilitators to transitions from CAMHS to AMHS.

Cultural divide present between CAMHS and AMHS; need for collaboration, improvement in information transfer

McNamara

2014

Ireland

Qualitative

Report findings of a nationwide survey of policies and procedures pertaining to CAMHS-AMHS transitions

Need to prioritize continuity of care for those ineligible for transition, training and collaboration regarding transition

Mental Health Commission of Canada

2017

Canada

Report

Inform stakeholders on how to prioritize TAY in mental health funding.

N/A

Mulvale

2015

Canada

Literature review

Examine differences in care philosophies between CAMHS and AMHS and how these affect transitions.

AMHS/CAMHS providers need to better understand each other’s care philosophies

Muñoz-Solomando

2010

UK

Literature Review

Examine literature on causes for varying quality of adolescent transition services.

Suggested alternate definition of transition; Need for clarity in the field of transition research; Identified principles for effective transition

Paul

2014

UK

Literature review

Examine literature on CAMHS-AMHS transitions.

Not enough good quality research on transitional care; Need for research on effectiveness of different models of care for transitions

Plaistow

2014

UK

Literature Review

Examine literature on views of young people with regard to barrier and facilitators to engagement in mental health services.

Need to engage young people in service redesign activities

Rayar

2015

Canada

Perspective

N/A

Importance of transitions must be addressed

Richards

2004

UK

Qualitative

Develop themes of youth mental health services needs based on professional perspectives.

Need for inter-professional forum and protocols, including providers from both child and adult services; need for consistent age thresholds across agencies

Riosa

2015

Canada

Mixed Methods

Examine mental health needs of late adolescents.

Youth report moderate self-efficacy, concerns about transition, desire for active participation, and need for trusting relationships

Sainsbury

2011

UK

Report

Explore innovative strategies related to CAMHS-AMHS transitions and experiences of youth with mental health problems.

N/A

Salaheddin

2016

UK

Quantitative

Examine barriers to accessing mental health support for youth.

Need for improved youth MH literacy, therapeutic relationships to foster help-seeking, stigma reduction, and GP insight into youth MH care

Schandrin

2016

France

Retrospective

Analyze quality of transitions from CAMHS to AMHS in a hospital.

CAMHS-AMHS transitions are sub-optimal

Scholz

2019

Australia

Literature review

Compile understandings of transition from adolescent to adult mental health services

Need for reformation of transitions for youth MH care

Signorini

2018

Europe - multinational

Quantitative

Describe transition policies and highlight gaps in care.

Need to resolve discontinuity of care at transition interface, possibly through common training, shared management, joint review, standardized needs assessment, and active participation in care

Singh

2005

UK

Perspective

Commentary on existing barriers to transition and strategies to bridge the divide between child and adult services.

Need for approach that is both ‘top down’ and ‘bottom up’ to improve transition interface

Singh

2010

UK

Mixed methods

Present findings from stages 2 and 4 of TRACK study.

Need for evidence-based models of care

Singh

2015

UK

Perspective

Commentary on transitions from child to adult mental health services.

Need for urgent service reformation to meet unique needs of young people

Skehan

2017

USA

Literature Review

Explore barriers and facilitators in treatment and strategies for TAY.

Need for coordination and continuity of care, family participation, and youth-centred training for providers

Stagi

2015

Italy

Quantitative

Evaluate factors related to continuity of care from CAMHS to AMHS.

Need for research on evidence-based treatments and practice for effective transitions

TAYMHA Advisory Committee

2015

Canada

Report

N/A

N/A

Ubido

2015

UK

Literature review

Present evidence of gaps between child and adult mental health services.

N/A

van der Kamp

2018

UK

Qualitative

Describe barriers and facilitators for successful transitions from CAMHS to AMHS.

Need for improvement of transitions

Vloet

2011

Canada

Qualitative

Identify evidence for effective transitions and highlight stakeholder perspectives on CAMHS-AMHS transitions.

Need for shared management framework to facilitate effective transitions

Whitney

2012

USA

Perspective

Personal experiences of youth with mental health conditions.

Need for services that cater to youth needs and incorporate youth voice

Winston

2012

UK

Perspective

Examine differences between CAMHS and AMHS in treating anorexia nervosa.

Need for greater awareness about transition issues and liaisons between services