Global, regional, and national incidence, prevalence, and years lived with disability for 328 diseases and injuries for 195 countries, 1990–2016. A systematic analysis for the Global Burden of Disease Study 2016. Lancet. 2017;390(10100):1211–59.
Article
Google Scholar
Swerissen H, Duckett S. Dying Well: Grattan Institute; 2014. ISBN: 978–1–925015-61-4
Institute of Medicine. Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. 2014 http://www.nationalacademies.org/hmd/Reports/2014/Dying-In-America-Improving-Quality-and-Honoring-Individual-Preferences-Near-the-End-of-Life.aspx.
Google Scholar
Australian Government Department of Health and Ageing. National Palliative Care Strategy 2018. Canberra: Australian Health Ministers’ Advisory Council; 2018.
Google Scholar
Aged Care Quality and Safety Commission Guidance and Resources for Providers to support the Aged Care Quality Standards. 2019.
Australian Commission on Safety and Quality in Healthcare: National Standards https://www.safetyandquality.gov.au/. 2020.
The Clinical Technical and Ethical Principal Committee of the Australian Health Minister's Advisory Council.A National Framework for Advance Care Directives. 2011.
Google Scholar
Royal Commission into Aged Care Quality and Safety, Commonwealth Of Australia. Advance Care Planning in Australia. Background Paper 5. June 2019. 2019.
Google Scholar
Haining C, Nolte LDKM. Australian advance care planning laws: can we improve consistency? 2020.
Google Scholar
Sudore RL, Lum HD, You JJ, Hanson LC, Meier DE, Pantilat SZ, et al. Defining Advance Care Planning for Adults: A Consensus Definition From a Multidisciplinary Delphi Panel. J Pain Symptom Manage. 2017.
Rietjens JAC, Sudore RL, Connolly M, van Delden JJ, Drickamer MA, Droger M, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol. 2017;18(9):e543–e51.
Article
PubMed
Google Scholar
Sudore RL, Heyland DK, Lum HD, Rietjens JAC, Korfage IJ, Ritchie CS, et al. Outcomes That Define Successful Advance Care Planning: A Delphi Panel Consensus. J Pain Symptom Manage. 2018;55(2):245–55 e8.
Article
PubMed
Google Scholar
Jimenez G, Tan WS, Virk AK, Low CK, Car J, Ho AHY. Overview of Systematic Reviews of Advance Care Planning: Summary of Evidence and Global Lessons. J Pain Symptom Manage. 2018;56(3):436–59 e25.
Article
PubMed
Google Scholar
Brinkman-Stoppelenburg A, Rietjens JA, van der Heide A. The effects of advance care planning on end-of-life care: A systematic review. Palliat Med. 2014;28(8):1000–25.
Article
PubMed
Google Scholar
Houben CH, Spruit MA, Groenen MT, Wouters EF, Janssen DJ. Efficacy of advance care planning: a systematic review and meta-analysis. J Am Med Directors Assoc. 2014;15(7):477–89.
Article
Google Scholar
Hartog CS, Reinhart K. Staff and family response to end-of-life care in the ICU. Curr Opin Anaesthesiol. 2018;31(2):195–200.
Article
PubMed
Google Scholar
Klinger CA, Howell D, Zakus D, Deber RB. Barriers and facilitators to care for the terminally ill: A cross-country case comparison study of Canada, England, Germany, and the United States. Palliative Medicine. 2014;28(2):111–20.
Article
PubMed
Google Scholar
Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ. 2010;340:c1345.
Article
PubMed
PubMed Central
Google Scholar
Yadav KN, Gabler NB, Cooney E, Kent S, Kim J, Herbst N, et al. Approximately one in three US adults completes any type of advance directive for end-of-life care. Health Affairs. 2017;36(7):1244–51.
Article
PubMed
Google Scholar
Buck K, Detering KM, Pollard A, Sellars M, Ruseckaite R, Kelly H, et al. Concordance between self-reported completion of advance care planning documentation and availability of documentation in Australian health and residential aged care services. J Pain Symptom Manage. 2019.
Hemsley B, Meredith J, Bryant L, Wilson NJ, Higgins I, Georgiou A, et al. An integrative review of stakeholder views on Advance Care Directives (ACD): Barriers and facilitators to initiation, documentation, storage, and implementation. Patient Educ Couns. 2019.
Flo E, Husebo BS, Bruusgaard P, Gjerberg E, Thoresen L, Lillemoen L, et al. A review of the implementation and research strategies of advance care planning in nursing homes. BMC Geriatr. 2016;16:24.
Article
CAS
PubMed
PubMed Central
Google Scholar
Detering KM, Buck K, Ruseckaite R, Kelly H, Sellars M, Sinclair C, et al. Prevalence and correlates of advance care directives among older Australians accessing health and residential aged care services: multicentre audit study. BMJ Open. 2019;9(1):e025255.
Article
PubMed
PubMed Central
Google Scholar
Sharp T, Moran E, Kuhn I, Barclay S. Do the elderly have a voice? Advance care planning discussions with frail and older individuals: a systematic literature review and narrative synthesis. Br J Gen Pract. 2013;63.
Yung VY, Walling AM, Min L, Wenger NS, Ganz DA. Documentation of advance care planning for community-dwelling elders. Journal of palliative medicine. 2010;13(7):861–7.
Article
PubMed
PubMed Central
Google Scholar
Thomas K, Lobo B, Detering K. Advance care planning in end of life care. New York: Oxford University Press; 2017.
Google Scholar
Aguilera V. Conversations that go unspoken: The necessity of advance care planning. Nursing. 2020;50(1):67–8.
Article
PubMed
Google Scholar
Waller A, Sanson-Fisher R, Nair BR, Evans T. Preferences for End-of-Life Care and Decision Making Among Older and Seriously Ill Inpatients: A Cross-Sectional Study. J Pain Symptom Manage. 2020;59(2):187–96.
Article
PubMed
Google Scholar
Hagen NA, Howlett J, Sharma NC, Biondo P, Holroyd-Leduc J, Fassbender K, et al. Advance care planning: identifying system-specific barriers and facilitators. Curr Oncol. 2015;22(4):e237–45.
Article
CAS
PubMed
PubMed Central
Google Scholar
Biondo PD, Lee LD, Davison SN, Simon JE. Advance Care Planning Collaborative R, Innovation Opportunities P. How healthcare systems evaluate their advance care planning initiatives: Results from a systematic review. Palliat Med. 2016;30(8):720–9.
Article
PubMed
Google Scholar
Rhee JJ, Zwar NA, Kemp LA. Uptake and implementation of Advance Care Planning in Australia: findings of key informant interviews. Australian Health Review. 2012;36(1):98–104.
Article
PubMed
Google Scholar
in der Schmitten J, Lex K, Mellert C, Rothärmel S, Wegscheider K, Marckmann G. Implementing an advance care planning program in German nursing homes: results of an inter-regionally controlled intervention trial. Dtsch Ärztebl Int. 2014;111(4):50.
PubMed
PubMed Central
Google Scholar
Hammes BJ, Rooney BL, Gundrum JD. A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem. J Am Geriatr Soc. 2010;58(7):1249–55.
Article
PubMed
Google Scholar
Heyland DK, Barwich D, Pichora D, Dodek P, Lamontagne F, You JJ, et al. Failure to engage hospitalized elderly patients and their families in advance care planning. J Am Med Assoc Intern Med. 2013;173(9):778–87.
Google Scholar
Risk J, Mohammadi L, Rhee J, Walters L, Ward PR. Barriers, enablers and initiatives for uptake of advance care planning in general practice: a systematic review and critical interpretive synthesis. BMJ Open. 2019;9(9):e030275.
Article
PubMed
PubMed Central
Google Scholar
Batchelor F, Hwang K, Haralambous B, Fearn M, Mackell P, Nolte L, et al. Facilitators and barriers to advance care planning implementation in Australian aged care settings: A systematic review and thematic analysis. Australas J Ageing. 2019;38(3):173–81.
Article
PubMed
Google Scholar
Lovell A, Yates P. Advance Care Planning in palliative care: A systematic literature review of the contextual factors influencing its uptake 2008–2012. Palliat Med. 2014.
Threapleton DE, Chung RY, Wong SYS, Wong ELY, Kiang N, Chau PYK, et al. Care Toward the End of Life in Older Populations and Its Implementation Facilitators and Barriers: A Scoping Review. J Am Med Directors Assoc. 2017;18(12):1000.
Article
Google Scholar
Jimenez G, Tan WS, Virk AK, Low CK, Car J, Ho AHY. State of advance care planning research: A descriptive overview of systematic reviews. Palliat Support Care. 2018:1–11.
Combes S, Nicholson CJ, Gillett K, Norton C. Implementing advance care planning with community-dwelling frail elders requires a system-wide approach: An integrative review applying a behaviour change model. Palliat Med. 2019;33(7):743–56.
Article
PubMed
PubMed Central
Google Scholar
Hemsley B, Meredith J, Bryant L, Wilson NJ, Higgins I, Georgiou A, et al. An integrative review of stakeholder views on Advance Care Directives (ACD): Barriers and facilitators to initiation, documentation, storage, and implementation. Patient Educ Couns. 2019;102(6):1067–79.
Article
PubMed
Google Scholar
Gilissen J, Pivodic L, Smets T, Gastmans C, Vander Stichele R, Deliens L, et al. Preconditions for successful advance care planning in nursing homes: A systematic review. Int J Nurs Stud. 2017;66:47–59.
Article
PubMed
Google Scholar
Chan CWH, Ng NHY, Chan HYL, Wong MMH, Chow KM. A systematic review of the effects of advance care planning facilitators training programs. BMC Health Serv Res. 2019;19(1):362.
Article
PubMed
PubMed Central
Google Scholar
Detering KM, Buck K, Sellars M, Kelly H, Sinclair C, White B, et al. Prospective multicentre cross-sectional audit among older Australians accessing health and residential aged care services: protocol for a national advance care directive prevalence study. BMJ Open. 2019;9(10):e031691.
Article
PubMed
PubMed Central
Google Scholar
Australian Digital Health Agency. My Health Record. https://www.myhealthrecord.gov.au/.
White B, Tilse C, Wilson J, Rosenman L, Strub T, Feeney R, et al. Prevalence and predictors of advance directives in Australia. Intern Med J. 2014;44(10):975–80.
Article
CAS
PubMed
Google Scholar
McAuley WJ, Buchanan RJ, Travis SS, Wang S, Kim M. Recent trends in advance directives at nursing home admission and one year after admission. Gerontol. 2006;46(3):377–81.
Article
Google Scholar
Siu HYH, Elston D, Arora N, Vahrmeyer A, Kaasalainen S, Chidwick P, et al. The Impact of Prior Advance Care Planning Documentation on End-of-Life Care Provision in Long-Term Care. Can Geriatr J. 2020;23(2):172–83.
Article
PubMed
PubMed Central
Google Scholar
Lo Y-T, Wang J-J, Liu L-F, Wang C-N. Prevalence and related factors of do-not-resuscitate directives among nursing home residents in Taiwan. J Am Med Directors Assoc. 2010;11(6):436–42.
Article
Google Scholar
Scott IA, Rajakaruna N, Shah D, Miller L, Reymond E, Daly M. Normalising advance care planning in a general medicine service of a tertiary hospital: an exploratory study. Aust Health Rev. 2016;40(4):391–8.
Article
PubMed
Google Scholar
Knight T, Malyon A, Fritz Z, Subbe C, Cooksley T, Holland M, et al. Advance care planning in patients referred to hospital for acute medical care: results of a national day of care survey. EClinicalMedicine. 2020;19:100235.
Article
PubMed
PubMed Central
Google Scholar
Barnato AE, O'Malley AJ, Skinner JS, Birkmeyer JD. Use of Advance Care Planning Billing Codes for Hospitalized Older Adults at High Risk of Dying: A National Observational Study. J Hosp Med. 2019;14(4):229–31.
Article
PubMed
PubMed Central
Google Scholar
Meeussen K, Van den Block L, Echteld M, Bossuyt N, Bilsen J, Van Casteren V, et al. Advance care planning in Belgium and The Netherlands: a nationwide retrospective study via sentinel networks of general practitioners. Journal of pain and symptom management. 2011;42(4):565–77.
Article
PubMed
Google Scholar
Dixon J, Knapp M. Whose job? The staffing of advance care planning support in twelve international healthcare organizations: a qualitative interview study. Bmc Palliative Care. 2018;17:16.
Article
Google Scholar
Spencer E, Waran E. Opening the lines of communication: towards shared decision making and improved end-of-life care in the Top End. Med J Aust. 2020;213(1):10–1 e1.
Article
PubMed
Google Scholar
Lam LAA, Baquir PJ, Chowdhury N, Tran K, Bailey J. Current practices, barriers and enablers for advance care planning among healthcare workers of aged care facilities in western New South Wales, Australia. Rural and Remote Health. 2018;18(4714).
Fletcher S, Sinclair C, Rhee J, Goh D, Auret K. Rural health professionals' experiences in implementing advance care planning: a focus group study. Aust J Prim Health. 2016;22(5):423–7.
Article
PubMed
Google Scholar
Tan WS, Car J, Lall P, Low CK, Ho AHY. Implementing Advance Care Planning in Acute Hospitals: Leading the Transformation of Norms. J Am Geriatr Soc. 2019;67(6):1278–85.
Article
PubMed
Google Scholar
Glaudemans JJ. Moll van Charante EP, Willems DL. Advance care planning in primary care, only for severely ill patients? A structured review. Fam Pract. 2015;32(1):16–26.
Article
PubMed
Google Scholar
Macleod A, Detering K, Nolte L. Content and quality assessment of advance care planning policies in Australian health and residential aged care services:Implications for future policy development. Melbourne: ACP; 2020.
Google Scholar