Table 1 Questions in the on-line questionnaire
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- Has your organisation ever taken action about the pricing/and or the payment allowance for a drug? (e.g. by contacting other organisations or groups, submitting complaints, taking legal steps) |
| - In the case of which drug(s) did your organisation take action? |
| - For which reason(s) did your organisation take action? |
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- What form did the action(s) take? (please also refer to the authorities or bodies at which the action was aimed) |
| - What did your organisation wish to achieve with the action? |
| - Did your organisation achieve its goal? |
| - Did your organisation take action alone or jointly with others? |
| - Which action(s) did your organisation undertake with others? |
| - With whom did your organisation undertake the action(s)? |
| - Who took the initiative to act jointly? |
| - With hindsight, how does your organisation evaluate its role in the process (according to level of satisfaction)? Please give your reasons for the answer. |
| - Which recommendations would your organisation give to other patient organisations? (please indicate what you would advise and what you would advise against) |
| - Does your organisation have a policy (protocol) on collaboration with the pharmaceutical industry? Please indicate the key points of your organisation's policy (or protocol). |
| So far your organisation has taken no action in respect of the pricing or payment allowance for drugs. In that case please answer the questions below. |
| - Has your organisation ever been approached with a view to taking action in respect of pricing and/or the payment allowance for drugs? |
| - Has your organisation ever considered taking action? |
| - By whom was your organisation approached? |
| - Why did you not take this up/take any action? |