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Table 2 Parent/guardian and child/young person participant characteristics

From: Between equilibrium and chaos, with little restitution: a narrative analysis of qualitative interviews with clinicians and parent carers of children with medical complexity

Participant

Role within family unit

Residential location (RRMA)*

Tertiary specialties involved in their child’s care

P1

Mother

Metropolitan

Neurology, Gastrology,

General paediatrics

P2

Mother

Metropolitan

Respiratory, Endocrinology, Gastrology

P3

Mother

Metropolitan

Neurology, Gastrology,

General paediatrics

P4

Mother

Metropolitan

General paediatrics, Respiratory, Endocrinology, Gastrology

P5

Mother

Metropolitan

Neurology, Oncology,

General paediatrics

P6

Mother

Metropolitan

Palliative care, Neurology, Respiratory, General paediatrics

P7

Mother

Metropolitan

Endocrinology, Ophthalmology, Orthopaedics, General paediatrics

P8

Mother

Rural

Neurology, Gastrology, General paediatrics

P9

Mother

Rural

Orthopaedics, Rehabilitation, Urology, General paediatrics

P10

Father

Rural

Neurology, Orthopaedics,

General paediatrics

  1. Characteristics of the 10 parent/guardian participants, including their role within the family unit, the residential location of their child, and the tertiary specialty teams involved in their child’s care
  2. * The Rural, Remote and Metropolitan Area (RRMA) classification divides Australia metropolitan, rural and remote zones [15]