Table 6 Generation of categories from open-ended question on Stroke Survivors Needs Survey asking about other requirements not covered by the survey questions
From: Transitioning to home and beyond following stroke: a prospective cohort study of outcomes and needs
Category | Unmet-need |
|---|---|
Processes for Successful Transition to Home and Life After Stroke | “Disabled persons housing grant is too slow, and people are struggling unnecessarily because it’s so slow” |
Empowering People with Stroke and Families through Comprehensive Health and Social Care Information | “Can’t take everything in in hospital and now there is no information available” |
Navigating Stroke Journeys Together | “Concrete plan with goal setting and targets. This needs to be a partnership, identify the problems together, and solve problems together” |
Effective Communication and Information Sharing for Individualised Healthcare | “Blood pressure medications now lower than what I was previously on and my GP didn’t know I had a stroke” |
Comprehensive Whole-Systems Approach to Rehabilitation and Recovery | “Information on the Irish Heart Foundation* - heard rumours of what’s available but nothing concrete” |
Empowering Families | “Family involved in getting information about stroke - especially when it is clear the patient does not understand the information” |
Keyworker / Dedicated Case Manager Role: a Bridge between Healthcare Settings and Person with Stroke / Families | “Link person between the acute and community to field questions” |
Comprehensive Monitoring and Support for Residual Needs and Long-Term Stroke Recovery | “Follow-up after 3-months (by ESD team), for review and residual needs assessment and signposting as appropriate - “to do a final signoff”, to be able to ask questions about symptoms that emerge in long-term, to help adjust and accept any mild deficits. This would help you to accept the stroke” |