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Table 1 Overview of the data collected, instruments, and the time of collection

From: Transitioning to home and beyond following stroke: a prospective cohort study of outcomes and needs

Data

Instrument

Source

Time of data collection

Baseline (TO)

3-months (T1)

6-months (T2)

Participant characteristics

Date of birth

Questionnaire

Gatekeeper

  

Sex

Questionnaire

Researcher

  

Cohabiting

Questionnaire

Researcher

  

Work status

Questionnaire

Researcher

  

Home care -pre stroke

Questionnaire

Researcher

  

Disease-related data

Date of stroke

Questionnaire

Gatekeeper

  

Type of stroke

Questionnaire

Gatekeeper

  

Aphasia

Questionnaire

Gatekeeper

  

Reperfusion therapy

Questionnaire

Gatekeeper

  

Stroke severity (NIHSS)

Questionnaire

Gatekeeper

  

Outcomes

Global health

PROMIS 10

Researcher

Disability

smRS

Researcher

Cognition

T-MoCA

Researcher

Quality of life

EQ5D-5L

Researcher

Needs

Needs

Stroke Survivor Needs Survey

Researcher