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Table 1 Overview of outcomes and corresponding measures used

From: Effectiveness of digital care platform CMyLife for patients with chronic myeloid leukemia: results of a patient-preference trial

Outcome

Measure

Information provision

Familiarity with CML related concepts

EORTC QLQ-INFO25a [24]

eHealth literacy

eHealth Literacy Scale [25]

Patient empowerment

Patient Activation Measure [26,27,28]

Medication compliance

Medication Adherence Rating Scale [29, 30]

Self-reported effectiveness on medication compliance b

Molecular monitoring

Frequency of hospital visits in the past 12 months

Self-reported effectiveness on molecular monitoring c

Quality of life

EORTC QLQ-C30d [31]

EORTC QLQ-CML24e [32]

  1. aEuropean Organization for Research and Treatment of Cancer Quality of Life Questionnaire Information 25-item, bQuestions and interpretation of self-reported effectiveness on medication compliance is described in Additional file 2, cQuestions and interpretation of self-reported effectiveness on molecular monitoring is described in Additional file 2. dEuropean Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30-item, eEuropean Organization for Research and Treatment of Cancer Quality of Life Questionnaire Chronic Myeloid Leukemia 24-item