From: COVID-19’s impact on care practice for alpha-1-antitrypsin deficiency patients
Positive cross-board effects |
Organization of online seminars to reinforce patient’s information and reduce their uncertainty |
Use of different media and social networks to give best public health advice and recommendations to patients who need it |
Better communication between different care levels |
Increased involvement and participation of patients’ associations in the dissemination of information, providing support to patients and strengthening psychosocial monitoring |
Negative cross-board effects |
Mistrust on going to the health center for fear of infection |
Problems in differentiating between patients with respiratory conditions and suspected COVID patients, thus being admitted incorrectly to the special COVID circuit, and consequently making it difficult to access appropriate consultations |
Professionals’ feeling of loneliness during the pandemic, highlighting the need to establish coordinated criteria among them for decision-making, in line with legal and ethical principles |
Emotional tension and stress among professionals, the lack of official documents and criteria for managing the pandemic, and treatment continuity for patients with chronic diseases |