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Table 4 Service Utilization related to HD and Other Disease in the Study Population using the CSRI (recorded over 6 months, if other not reported)

From: Health related quality of life, service utilization and costs for patients with Huntington’s disease in Norway

Type of service (visits)

HD patient service utilization

Mean (SD) for patients to use the service

Average proportion per individual in the sample using the service

Primary care (community care)

  

 GP

3.42 (4.17)

0.42

 Physiotherapist

24.86 (18.46)

0.33

 Speech therapist

19.47 (13.51)

0.20

Home care

  

 Home nurse (days)

182.73 (403.60)

0.17

 Practical assistance (hours per week)

21.28 (85.99)

0.51

Nursing home (months)

6.00 (−)

0.21

Rehabilitation (days per 6 months)

31.5 (−)

0.37

Specialists

  

 Counselor (genetic)

7.33 (10.97)

0.03

 Family therapy

3.00 (−)

0.01

 Nutrition

2.00 (−)

0.01

 Nurse

6.87 (8.77)

0.17

 Psychiatrist

12.00 (21.34)

0.06

 Psychologist

7.33 (4.16)

0.03

 Genetic test

1.00 (−)

0.01

 MRI

1.00 (−)

0.03

 CT

1.00 (−)

0.05

 Blood

1.08 (0.44)

0.58

Secondary care

  

 Neurology outpatient visit

1.41 (1.53)

0.26

 Other outpatient visits

1.70 (1.69)

0.23

Hospital admissions

  

 Hospital Intensive care

1.00 (−)

0.02

 Hospital Neuro department

5.00 (−)

0.01

 Hospital other department

5.33 (5.13)

0.07

Out-of-pocket

  

 Acupuncture

6.00 ()

0.01

 Aroma therapy

3.00 ()

0.01

 Foot zone therapy

1.00 ()

0.01

Social worker

3.00 ()

0.01