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Table 2 Population characteristics for the total sample and according to HD stage. Numbers are frequencies and percentages, if not stated otherwise

From: Health related quality of life, service utilization and costs for patients with Huntington’s disease in Norway

Variables

Categories

Complete sample

Early HD (TFC 7–13)

Moderate HD (TFC 3–6)

Advanced HD (TFC 0–2)

(N = 86)

(n = 35)

(n = 19)

(n = 32)

Socio-demographic variables

Age, mean (SD)

range

 

57 (11.4)

28–87

53 (11.9)

28–71

59 (11.1)

39–82

59 (10.2)

41–87

Gender

Female

39 (45)

13 (38)

7 (37)

17 (55)

Male

47 (55)

21(62)

12 (63)

14 (45)

Occupation

Manual

40 (49)

14 (41)

12 (63)

14 (50)

Non Manual

41 (51)

20 (58)

7 (37)

14 (50)

Education

< 12 years

52 (60)

16 (47)

15 (79)

20 (65)

12+

34 (40)

18 (53)

4 (21)

11 (36)

Housing situation

Living at home

54 (63)

34 (100)

13 (68)

5 (16)

Not living at home

32 (37)

6 (32)

26 (84)

Resindence

Rural

13 (15)

4 (12)

2 (11)

6 (19)

Urban

73 (85)

30 (88)

17 (90)

25 (81)

Marital status

Married (married and living together)

50 (58)

23 (68)

10 (53)

15 (48)

Single (single, separated, widowed)

36 (42)

11 (32)

9 (47)

16 (52)

Clinical and disease characteristics

Disease duration, mean (SD)

range

7.2 (4.7)

0.7–18.7

4.6 (4.1)

0.7–18.7

7.0 (3.8)

1.1–17

10.2 (4.1)

4.3–17.6

Total FAS score, mean (SD)

range

12.7 (8.7

0–25

21.4 (2.6)

15–25

13.6 (2.9)

7–18

2.7 (2.8)

0–9

Independence score, mean (SD)

range

60.1 (26.3)

10–100

85.0 (9.0)

75–100

64.7 (6.3)

50–70

29.7 (22.8)

10–50

Comorbidity

None

50 (57)

16 (47)

9 (47)

23 (74)

1 or more

36 (43)

18 (53)

10 (53)

8 (26)