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Table 2 Characteristics of informal caregivers who participated in the survey and characteristics of people without natural speech

From: Burden of informal caregivers of people without natural speech: a mixed-methods intervention study

Characteristics of informal caregivers

 

nSD (n = 88) n (%)

SDeC (n = 66) n (%)

Age (in years)

  < 29

12 (13.6)

8 (12.1)

  30–39

35 (39.8)

19 (28.8)

  40–49

34 (38.6)

26 (39.4)

  50–59

6 (6.8)

10 (15.2)

  60–69

1 (1.1)

3 (4.5)

Sex

 

  Female

70 (79.5)

51 (77.3)

  Male

18 (20.5)

15 (22.7)

Relationship to the person who uses AAC

  Parents / legal guardians

85 (96.6)

64 (97)

  Other relatives

3 (3.4)

2 (3)

Characteristics of people without natural speech

Age (in years)

  0–2

0 (0)

4 (6.1)

  3–6

45 (51.1)

28 (42.4)

  7–10

22 (25)

15 (22.7)

  11–14

10 (11.4)

10 (15.2)

  15–19

5 (5.7)

3 (4.5)

  20–29

3 (3.4)

3 (4.5)

  30–39

2 (2.3)

1 (1.5)

  40–49

0 (0)

2 (3)

  over 49

1 (1.1)

0 (0)

Sex

  Female

30 (34.1)

20 (30.3)

  Male

58 (65.9)

46 (69.7)

Congenital versus acquired disability

  Congenital

82 (93.2)

58 (87.9)

  Acquired

6 (6.8)

8 (12.1)

Degree of disability

  Below 50

11 (12.5)

8 (12.1)

  50 to 99

29 (33)

22 (33.3)

  100

48 (54.5)

36 (54.5)

  1. Note: The construct "degree of disability" originates from the German social system. The disability of a person in Germany is stated in degrees from 20 to 100, and the degree is assessed in a formal procedure. With a degree of 50 or higher, a person is considered severely disabled