From: Burden of informal caregivers of people without natural speech: a mixed-methods intervention study
Characteristics of informal caregivers | ||
---|---|---|
 | nSD (n = 88) n (%) | SDeC (n = 66) n (%) |
Age (in years) | ||
  < 29 | 12 (13.6) | 8 (12.1) |
  30–39 | 35 (39.8) | 19 (28.8) |
  40–49 | 34 (38.6) | 26 (39.4) |
  50–59 | 6 (6.8) | 10 (15.2) |
  60–69 | 1 (1.1) | 3 (4.5) |
Sex | Â | |
  Female | 70 (79.5) | 51 (77.3) |
  Male | 18 (20.5) | 15 (22.7) |
Relationship to the person who uses AAC | ||
  Parents / legal guardians | 85 (96.6) | 64 (97) |
  Other relatives | 3 (3.4) | 2 (3) |
Characteristics of people without natural speech | ||
Age (in years) | ||
  0–2 | 0 (0) | 4 (6.1) |
  3–6 | 45 (51.1) | 28 (42.4) |
  7–10 | 22 (25) | 15 (22.7) |
  11–14 | 10 (11.4) | 10 (15.2) |
  15–19 | 5 (5.7) | 3 (4.5) |
  20–29 | 3 (3.4) | 3 (4.5) |
  30–39 | 2 (2.3) | 1 (1.5) |
  40–49 | 0 (0) | 2 (3) |
  over 49 | 1 (1.1) | 0 (0) |
Sex | ||
  Female | 30 (34.1) | 20 (30.3) |
  Male | 58 (65.9) | 46 (69.7) |
Congenital versus acquired disability | ||
  Congenital | 82 (93.2) | 58 (87.9) |
  Acquired | 6 (6.8) | 8 (12.1) |
Degree of disability | ||
  Below 50 | 11 (12.5) | 8 (12.1) |
  50 to 99 | 29 (33) | 22 (33.3) |
  100 | 48 (54.5) | 36 (54.5) |