Table 1 Results of PJM tool Spreadsheet Two. Indigenous concepts of health and healing and family and healthcare professional perspectives

Caregiver's perspective

Accessible and appropriate care

Accessible and appropriate care

Care arranged for sibling and family contacted

Identification question asked

Felt scared and ignored

Social worker provided support

Communication was inconsistent

Felt judged for not staying in the hospital

Unable to work with subsequent extreme financial pressure and no access to disability pension

Food vouchers infrequent and covered only very minimal amounts

Difficult to find care for sibling

Increased burden on extended family for sibling care and visiting hospital

Sibling difficult behaviour

Financial support to cover part of fuel costs to drive to hospital each day. No PATS. Home bills left unpaid

Felt pushed out

Discharged without confidence

Psychological distress

Financial support to cover part of fuel costs to drive to hospital each day. No PATS

Unable to return to work for almost one year

Long appointments that meant whole day trips

Sustained burden on extended family for sibling care

Child's perspective (6yo or >)

N/A as child < 6yo

N/A as child < 6yo

N/A as child < 6yo

N/A as child < 6yo

N/A as child < 6yo

N/A as child < 6yo

N/A as child < 6yo

N/A as child < 6yo

Referring Hospital/GP

N/A

Not able to speak to Ambulance worker

Case Notes: identification question asked

Case Notes: consideration for care of sibling documented

N/A

N/A

N/A

N/A

N/A

AHW

No AHW employed

No AHW employed

No AHW employed

No AHW employed

No AHW employed

No AHW employed

No AHW employed

No AHW employed

A/ILO

N/A

N/A

N/A

Not notified child was Aboriginal whilst in ED

Supported family financially with fuel and food vouchers

Helped with access to hospital child care for sibling

Not resourced to provide support care outside of the hospital or to those family outside of the hospital environment

Arranged by burn team

Not resourced to provide support

Ngangkari (Traditional Healer)

Not requested by caregiver. ? availability

Not requested by caregiver. ? availability

Not requested by caregiver. ? availability

Not requested by caregiver. ? availability

Not requested by caregiver. ? availability

Not requested by caregiver. ? availability

Not requested by caregiver. ? availability

Not requested by caregiver. ? availability

Burn Nurse

N/A

N/A

Notified via pager

No support care provided

Attended ED on arrival of family

Spent time with caregiver

Provided caregiver with clothes to change in to

Time spent with caregiver M-F to ensure understanding

Made caregiver feel comfortable with environment

Encouraged accessing extended family for support with sibling

Provided written instructions

Gave some dressings

Attempts to make dual appointments

Occupational Therapist

N/A

N/A

N/A

Automatic referral received

Care provided in ICU

Attempts to make dual appointments

Discharge advice given

Attempts to make dual appointments

Physiotherapist

N/A

N/A

N/A

Automatic referral received

Positioning in ICU

Attempts to make dual appointments

Discharge advice given

Seen in scar clinic

Surgeon (medical staff)

N/A

N/A

N/A

Case Notes: Informed consent and surgical procedures

Case Notes: Informed consent and surgical procedures. Allowed caregiver to give consent over the phone for second and subsequent procedures

Case Notes: noted caregiver seen by social worker

Case Notes: Medical review prior to discharge

Case Notes: Wound and scar review as necessary

Psychologist

N/A

N/A

N/A

Case Notes: no input into care

Case Notes: no input into care

Case Notes: no input into care

Case Notes: no input into care

Case Notes: no input into care

Social Worker

N/A

N/A

N/A

Supported and sat with caregiver in ED

Explained situation

Explained presence of police officer and mandatory notifications

Supported caregiver with social health and welling

Ensured access to fuel and food vouchers

Provide written evidence to support disability pension claim

Ensured access to fuel vouchers

Not resourced to provide support once discharged