Design and Format | # of Participants (n = 10) | |
---|---|---|
Strengths | Reported the workbook was easy to use | 8 |
Liked how the information was presented in simple language and broken down into smaller points | 6 | |
Appreciated the ample blank spaces available for notetaking | 5 | |
Suggestions | A web-based version of the workbook would be acceptable | 10 |
Reformat Prompt 1 (Identify family members) to maximize use of space and capture additional family details | 6 | |
Expressed interest in an app version of the workbook with additional features for Lynch syndrome care management | 5 | |
Content | ||
 Strengths | Liked the Supplemental Resources as a place for more information to meet different needs and support for communication | 7 |
Liked how common concerns raised by family members were addressed with strategies for responding | 5 | |
 Suggestions | Expand information on Lynch syndrome-related cancers beyond colorectal and endometrial cancer and specific cancer risks associated with genetic variants | 7 |
Add information for cascade screening in children including strategies for communication and a reminder that testing is recommended at 18Â years old | 5 | |
Note the difficulty of establishing life insurance following a diagnosis | 4 |