Table 1 Interview Guide

1

Why don’t we begin by you telling me a little bit about yourself, and how you found out about your BRCA1/2 alteration. What I’d really like to know here is about how you found out about having a BRCA1/2 alteration, and what that was like for you

2

Overall, how do you think you coped with learning about your BRCA alteration?

PROMPT: Do you think it affected your day-to-day life?

3

Did you go to seek more information and support?

If yes: Where?

4

Broadly, can you tell me about how your relatives feel about BRCA?

Do you think any of your relationships with your family were affected by the news?

5

Do you talk openly about it within your family?

6

Were any of your relationships with your friends, or partner if you had one at the time, affected by the news?

7

Did you feel like you had enough support to cope with your BRCA1/2 alteration?

8

If the participant has children:

So the next thing I’d be interested in, is if you can tell me about talking with your kids. Do you discuss your BRCA1/2 alteration with your children?

9

If yes to Q. 8: Did you feel prepared to do this?

PROMPT: Did you seek information or support before bringing up the topic?

10

I think this is a nice question to end on: what advice would you give to someone that has just found out that they have a BRCA1/2 alteration?