Table 1 Topics of discussion measured in surveys

Scientific research

It refers to the research process or traditional ways to disseminate research findings.

Grant’s application, protocol writing, data collection, data analysis, or publications, conferences.

Training and mentoring

It refers to student supervision, training, or any other educational activity.

Mentoring, teaching, or participation in professional training.

Patient Engagement

It refers to patient partners’ (PP)’ participation within the DAC SPOR Network.

Participation of PPs in research committees, collaboration in the research process, management, or recruitment of PPs.

Management and operations

It refers to the management of projects or activity implementation.

Recruitment, reporting, coordination of services and resources.

Governance and coordination

It refers to the strategic decision-making for the whole Network or specific groups.

Defining the mission and objectives of the DAC SPOR Network, program evaluation, and planning, creating a new group, monitoring projects, or coordinating researchers.

Commercialization of research findings

It refers to the commercialization of research products.

Licensing, consultancy, intellectual property protection, or technology transfer processes.

Transfer of research findings

It refers to disseminating research results to external actors, excluding the commercialization of research and scientific publications.

Guidelines, policy briefs, media articles, or presentations to decision-makers.