Table 2 Themes and sub-themes

Feeling that their supportive care needs are unrecognised

  Not being ‘visible’ in the healthcare system, therefore not being known to breast care nurse

  Expectations that they ‘know the ropes’: assumptions that women with metastatic breast cancer know the system

  Having unmet needs for information, support and care coordination

  Needing support from someone other than oncologist

Confusion about role and relevance of breast care nurse to those with metastatic breast cancer

  Differing expectations / confusion as to support breast care nurses could provide

  Breast care nurses’ primary role is to provide care and support for those with early breast cancer

  Not yet ‘ill enough’ to be offered / require supportive care from breast care nurse

Care from metastatic breast care nurses (when available) was appreciated, valued and beneficial

  Valuing breast care nurses’ accessibility, availability and responsiveness

  Filling a gap: coordinating care, providing much-needed information, emotional and practical support

  Providing reassurance future needs will be met, especially towards end of life