Table 5 Main Themes and Sub-Themes
Main Theme with Exemplary Quote | Corresponding Sub-theme |
|---|---|
Finances and Transportation “You have to pay; well, we can’t afford $50 or $75 twice a week” | Paying out-of-pocket for services Reduction in income and employment Navigating financial assistance systems Access to subsidized transportation |
Challenged to take care of my own health “How can I find the time?” | Limited time and coping ability Few services available Limited system wide attention on importance of caregiver health |
Trust “He’s breathing, but is that good enough?” | Difficulty trusting that I can leave my family member alone Struggling to trust providers caring for my family member |
Limited information and lack of suitable services “There’s a year-long wait list” | Insufficient information on services Challenges with service availability |
Social support networks “They deserted us; they just don’t come around” | Social networks were avoidant Social networks rallied |