Table 1 Proposals to improve HA management within the SNHS
Area: General | |
|---|---|
1 | Assistance from multidisciplinary teams with all the relevant professionals involved. |
2 | Hospital case management nurse. |
3 | Training for general practitioners on the management of age-related comorbidities. |
4 | Coordination between primary care health centres and Haemophilia Treatment Centres through access to medical records throughout the country. |
5 | Networking between small centres and reference centres, and between reference centres themselves. |
6 | Home-delivery of hospital medication. |
Area: Patients with Arthropathy | |
7 | Protocol for the treatment of pain and training for professionals related to the management of the pathology. |
8 | Early diagnosis of arthropathy to adapt prophylaxis. |
9 | Protocol for a prompt referral between regions to perform orthopaedic surgery in reference centres. |
Area: Patients with Inhibitors | |
10 | Creation of a national registry of patients. |
11 | Training for patients with inhibitors and their families on management and care in haemophilia. |
12 | Inhibitor eradication protocols. |
Area: Paediatric patients | |
13 | Training for parents on the management of HA, provided in health centres, and the creation of patient groups. |
14 | Training for education professionals on caring for students with HA in schools. |
15 | Training for paediatric patients on treatment adherence. |