Table 2 National survivorship care survey items by priority practice
Survey items measuring “During survivorship care, how important is it that you” | Percent rating very important a |
|---|---|
Participate in decision-making about your cancer-related follow-up care | 81.3 |
Know all clinicians involved in care know your medication | 79.6 |
Feel in control of health and can manage follow-up care to improve health | 76.7 |
Receive referrals for cancer-related follow-up care | 76.0 |
Know all clinicians have your medical files on cancer care | 75.0 |
Know all clinicians share information with each other to stay up-to-date about your follow-up care | 74.2 |
Regularly receive complete physical with medical history | 71.9 |
Receive referrals to non-cancer specialty and follow-up services | 70.0 |
Are informed about health problems and how to take care of them | 66.9 |
Receive written survivorship care plan with recommendations for follow up care | 63.5 |
Receive written treatment summaryc | 62.3 |
Know all clinicians can access medical records online or through EHR | 60.4 |
Receive courtesy and respect | 60.0 |
Have regular access to risk reduction programs (e.g. weight loss, smoking cessationc) | 59.3 |
Discuss screening needs and recommendations for follow up care | 59.0 |
Have regular clinician/place to get all follow-up needs met | 58.4 |
Receive support to manage relationships with partners and family | 58.2 |
Have concerns related to cancer after treatment listened to | 58.0 |
Have enough time to ask questions/voice concerns during visits | 57.4 |
Have help understanding insurance coverage options for medical services | 56.4 |
Have help with insurance problems, e.g. rejected claims | 56.4 |
Receive explanation in a way that is easy to understand about follow-up care | 55.3 |
Discuss late/long-term side effects of cancer and treatment | 54.1 |
Receive support to manage what life is like after treatment ends | 53.1 |
Have help understanding insurance coverage options for Rx and OTC drugs | 53.1 |
Receive explanation for medical tests related to follow-up care | 53.0 |
Remain under cancer clinician until ready to transfer care is discussed | 52.4 |
Receive referrals to mental health care providers | 51.8 |
Discuss emotional concerns with regular doctor during follow-up care | 51.6 |
Discuss preference for treatment clinician to oversee post-treatment survivorship care | 51.0 |
Have team of clinicians who all work together to address follow-up health care | 51.0 |
Receive help problem-solving new health care issues | 50.4 |
Access your own medical records and recommendations online or through EHR | 50.3 |
Discuss preference for transferring care to PCP | 49.3 |
Have regular access to exercise and physical activity services | 49.0 |
Know cancer clinician stays informed of your health after care is transferred | 48.0 |
Have a point of contact to answer questions/concerns about follow-up care | 47.0 |
Decide with clinician when/how to transition from or share care between oncologist and PCP | 46.0 |
Receive instructions on when and how to transition care from oncologist back to PCP | 45.0 |
Receive help with follow through on recommendations for follow-up | 42.6 |
Receive information and guidance on who to call when experiencing health problems | 42.5 |
Have regular access to nutrition and dietary services | 40.1 |