Skip to main content

Table 2 Framework to design and evaluate collective involvement processes in the healthcare sector

From: Patient involvement at the managerial level: the effectiveness of a patient and family advisory council at a regional cancer centre in Sweden

Representation

Information

Process and procedures

Outcomes and decisions

Legitimacy and fairness of the selection process:

How are representatives chosen?

Is there a representative sample? (participant characteristics such as geographical location, demography, disease group)

Decisions regarding what and how information is selected, presented and interpreted

Degree of participant control/input into agenda setting

Degree of participant control/input into establishing rules

Degree of participation in decision-making

Level of participation in the organization: Who is listening and ultimately responding to the participants?

Time for deliberation

Respect and concern for others’ opinions

Is input incorporated into decisions? Are participants satisfied?

Does it improve or change policy-making or service provision?