Table 2 Themes and sub-themes

Transition preparedness

● Pre-transition information

● Readiness for transition

● Duration of transition preparation

● Family caregiver involvement

● Coordination of care

Factors facilitating transition experience

● Child-specific factors

● Family support

Challenges and coping mechanisms during transition

● Challenges during transition

● Coping and adapting to challenges

Current transition approach and suggestions for improvement

● Perceptions about health during transition

● Perceptions about health care providers

● Perceived benefits of transition

● Suggestions for improving transition