Table 2 List of the 26 demands identified
Clinical | Straightforward access to medical records | C1 |
Individualised pain management for each patient | C2 | |
Paramedical care adapted to the requirements of each patient | C3 | |
Medication adapted to the requirements of each patient | C4 | |
Availability of additional care (psychological, dietary follow-up, physiotherapy and sophrology, etc.) | C5 | |
Patient information on choice/change of treatment | C6 | |
Consideration of the patient’s opinion in selecting/changing treatment | C7 | |
Access to cutting-edge treatments (targeted therapy, surgical robots, clinical trials, etc.) | C8 | |
Non-clinical | Professionals make themselves available to patients | NC1 |
Professionals are courteous with patients | NC2 | |
Access to legal assistance (in the case of disputes with the institution or a healthcare professional) | NC3 | |
Access to administrative assistance (reporting of condition and triggering of reimbursements) | NC4 | |
Access to social support | NC5 | |
Respecting patient intimacy | NC6 | |
Formalisation of anticipated directives, as necessary | / | |
Application of the right to be forgotten In France, the AERAS agreement, which provides wider access to insurance and loans to individuals with serious risks; insured parties no longer have to declare their cancer after a certain period of time following the cessation of treatment | NC7 | |
Provision of a contact person for remote interaction with patients | NC8 | |
Adaptation of appointment schedules in line with patient constraints | NC9 | |
Announcement/justification of waiting times | NC10 | |
Shorter waiting times (consultations, wait for diagnosis, treatments) | NC11 | |
Availability of all information on potential activities and services (sport, beauty treatments, writing workshops, etc.) | NC12 | |
Consideration of patients’ beliefs Belief refers to values and primarily religious beliefs | NC13 | |
Availability in advance of details of therapeutic procedure tariffs | NC14 | |
Information in advance on levels of reimbursement for therapeutic procedures | NC15 | |
Availability of all tariff options (fees, surgical procedure, accommodation, etc.) during hospitalisation | NC16 | |
Availability of all tariff options for transport payments | NC17 |