Table 2 Profile of study sample
Characteristics | Patients (N = 93) n(%) | Caregivers (N = 56) n(%) |
|---|---|---|
Sex: Male | 55 (59.1) | 21 (37.5) |
Mean age (range) | 61 (25–86) | 51 (28–78) |
Caregiver relationship to patient: | ||
 Spouse/partner | – | 36 (64.3) |
 Child of patient | – | 17 (30.4) |
 Other | – | 3 (5.4) |
Site of onset: | ||
 Bulbar | 23 (24.7) | – |
 Spinal | 69 (74.1) | – |
 Cognitive | 1 (1.1) | – |
Median time in months since diagnosis (Q1, Q3) | 12.2 (5.5, 30.6) | Â |
Diagnosis </= 6 months | 23 (24.7) |  |
Diagnosis > 6 months | 70 (75.3) |  |
King’s Clinical Staging | ||
 Stage 1 or 2 | 26 (28.0) |  |
 Stage 3 or 4 | 62 (66.7) |  |