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Table 2 Distribution of the PACIC eleven-items: all English-speaking patients (N = 596)

From: Validation of the patient assessment of chronic illness care (PACIC) short form scale in heart transplant recipients: the international cross-sectional bright study

    Response categories, %
ItemMean(SD)MedianNeverGenerally notSome-timesMost of the timeAlwaysMissing values
12345
13.21.5318.319.517.515.828.20.8
24.80.651.50.31.512.484.10.2
33.41.4412.118.319.518.631.20.3
43.71.6516.112.66.78.754.71.2
52.61.5231.024.014.38.421.31.0
63.81.4410.19.417.019.644.00.0
73.41.5417.815.812.617.136.20.5
83.41.5418.314.812.416.336.71.5
93.61.4412.311.618.818.138.40.8
103.31.5316.816.618.611.735.40.8
113.21.5319.116.118.317.328.40.8
  1. SD Standard deviation.
  2. Items: 1) Given choices about treatment to think about; 2) Satisfied that my care was well organized. 3) Helped to set specific goals to improve my eating or exercise; 4) Given a copy of my treatment plan; 5) Encouraged to go to a specific group or class to help me cope with my heart transplantation; 6) Asked questions, either directly or with a questionnaire, about my health habits; 7) Helped to make a treatment plan that I could carry out in my daily life; 8) Helped to plan ahead so I could take care of my transplanted heart even in hard times; 9) Asked how my heart transplantation affects my life; 10) Contacted after a visit to see how things were going; 11) Told how my visits with other types of doctors, like an eye doctor or surgeon, helped my treatment [9].
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