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Table 2 Distribution of the PACIC eleven-items: all English-speaking patients (N = 596)

From: Validation of the patient assessment of chronic illness care (PACIC) short form scale in heart transplant recipients: the international cross-sectional bright study

    

Response categories, %

Item

Mean

(SD)

Median

Never

Generally not

Some-times

Most of the time

Always

Missing values

1

2

3

4

5

1

3.2

1.5

3

18.3

19.5

17.5

15.8

28.2

0.8

2

4.8

0.6

5

1.5

0.3

1.5

12.4

84.1

0.2

3

3.4

1.4

4

12.1

18.3

19.5

18.6

31.2

0.3

4

3.7

1.6

5

16.1

12.6

6.7

8.7

54.7

1.2

5

2.6

1.5

2

31.0

24.0

14.3

8.4

21.3

1.0

6

3.8

1.4

4

10.1

9.4

17.0

19.6

44.0

0.0

7

3.4

1.5

4

17.8

15.8

12.6

17.1

36.2

0.5

8

3.4

1.5

4

18.3

14.8

12.4

16.3

36.7

1.5

9

3.6

1.4

4

12.3

11.6

18.8

18.1

38.4

0.8

10

3.3

1.5

3

16.8

16.6

18.6

11.7

35.4

0.8

11

3.2

1.5

3

19.1

16.1

18.3

17.3

28.4

0.8

  1. SD Standard deviation.
  2. Items: 1) Given choices about treatment to think about; 2) Satisfied that my care was well organized. 3) Helped to set specific goals to improve my eating or exercise; 4) Given a copy of my treatment plan; 5) Encouraged to go to a specific group or class to help me cope with my heart transplantation; 6) Asked questions, either directly or with a questionnaire, about my health habits; 7) Helped to make a treatment plan that I could carry out in my daily life; 8) Helped to plan ahead so I could take care of my transplanted heart even in hard times; 9) Asked how my heart transplantation affects my life; 10) Contacted after a visit to see how things were going; 11) Told how my visits with other types of doctors, like an eye doctor or surgeon, helped my treatment [9].