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Table 2 Computer-assisted textual analysis, summary results

From: Computer-assisted textual analysis of free-text comments in the Swiss Cancer Patient Experiences (SCAPE) survey

Class

Typical words

Typical excerpt

Associated modality (p < 0.05)

Cancer care pathways

Prostate, lung, leukemia, lymphoma, nodule, CT, to detect, operation, chemotherapy, radiotherapy, immunotherapy, months of the year, weeks, sessions

“My colon and liver cancer were discovered in July, operated in August, followed by chemotherapy from September to February”

Age ≥ 65

Men

Prostate, lung and hematologic cancers

Neutral comments

Overall satisfaction 8/10

Breast cancer care pathways

Breast, tumor, cancer, malignant, metastasis, lymph nodes, gynecologist, screening, radiography mammography, echography, biopsy, to show/reveal, operate rate, removal

“hormone dependent breast cancer on the left side, discovered at a screening mammography […] lumpectomy followed by radiotherapy in January”

Age ≥ 75

Breast cancer

Neutral comments

Overall satisfaction 10/10

Medical care

Doctor (junior and senior doctors, oncologist, surgeons), medical department, patient, case, appointment, medical care, medical record, communication, organization, decisions, change, improve, follow, remind

“The post-operative care for the regular checkups is badly organized, the doctors change too often»

Women

Negative and mixed comments

Overall satisfaction ≤7/10

Gratitude and praise

Personnel, team, caregiver, nurse, oncology, thanks, gratitude, kindness, care, listening, competence, empathy, availability, quality, humanity, caring, extraordinary

“I’ll take this opportunity to thank all of the hospital personnel (nurses, doctors, radiologist, auxiliary staff, etc.) for their good care, their tact, their capacity to listen and their kindness”

Colorectal cancer

Positive comments Overall satisfaction 10/10

Cancer and me

disease, side effects, pain, hormonotherapy, insurance, finances, information, understand, life, activity, psychologically, entourage, to help, think, feel, talk, face, live, search, find, suggest

“The disease destroyed my marriage and my family but especially the lack of support and psychological help in view of the situation that we had to face, we didn’t have enough information on the treatments, the side effects and financial help etc.”

Age < 65 yrs.

Women

Breast cancer

Negative comments

Overall satisfaction 8/10