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Table 1 Parent reported experiences of health services for children with multi-referrals (N = 148): Descriptive information

From: How can we improve specialist health services for children with multi-referrals? Parent reported experience

Itema Questions N Meanb SD Frequencies
1 2 3 4 5
i11 Did you experience the care at the hospital as useful for your child and family? 137 3.9 1.1 4.4 9.5 13.9 36.5 35.8
i13 Considering every consultation you have had with Haukeland University Hospital; did you experience being well cared for? 147 3.9 1.0 3.4 5.4 22.4 37.4 31.3
i1 Did you experience the wait time before assessment as acceptable? 142 3.5 1.1 5.6 9.2 33.1 33.1 19.0
i2 Did you experience the consultations at the hospital as accommodated to your child and family’s situation? 148 4.0 1.1 4.1 4.7 16.2 36.5 38.5
i3 Did the clinicians talk to you in a way that was easy to understand? 148 4.2 1.0 2.0 4.1 12.2 31.8 50.0
i4 Did you, overall, experience that the health personnel you met at the hospital were well informed about your child’s situation and medical history? 145 3.7 1.1 2.8 13.1 22.1 39.3 22.8
i5 Were you involved in any decisions regarding your treatment? 142 3.9 1.1 4.9 7.7 21.1 30.3 35.9
i6 Was the collaboration between health personnel and parents/child satisfactory? 148 4.0 1.0 0.7 11.5 15.5 35.1 37.2
i7 Did you as parents, experience being appreciated as important resources for your child by your therapist? 148 4.2 1.0 3.4 4.7 12.8 31.1 48.0
i8 Did you get sufficient information about your child’s diagnosis/afflictions? 143 3.7 1.2 4.2 11.2 26.6 24.5 33.6
i9 Were you told as much as you considered necessary about the purpose of the examinations? 146 4.0 1.0 2.1 5.5 15.1 41.8 35.6
i10 Did you receive adequate information about the following treatment of your child? 140 3.4 1.1 6.7 5.8 33.3 27.5 26.7
i12 Did you perceive the collaboration between the different departments at the hospital as well organized? 112 3.2 1.2 9.8 18.8 31.3 25.0 15.2
i14 Was the collaboration between the hospital and your general practitioner (GP) satisfactory? 100 3.3 1.3 12.0 17.0 24.0 27.0 20.0
  1. aItems 1, 2, 3, 4, 5, 8, 9, 11, 12 and 13 originates from the Generic Short Patient Experiences Questionnaire or Parent Experiences of Paediatric Care (PEPC). Items 6 and 7 from parents, 4 and 10 from professions
  2. bMean score of responses; Response categories: value 1: Not at all; 2: To a little extent; 3: To some extent; 4: To a large extent; 5: To a very large extent