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Table 4 The Netherlands

From: What methods are used to promote patient and family involvement in healthcare regulation? A multiple case study across four countries

Individual/proactive

Collective/proactive

 • Interview patients or family during planned inspections in all care sectors

 • Collect experiences from adolescents and other patient groups (such as people living in poverty) in theme based inspections

 • Interview frail older service users to inform theme based inspection

 • Search social media to collect information from individual patients as signals in risk based supervision

 • User panels on specific regulatory topics

 • User involvement in multi annual policy plan

 • Advisory board of children (Children’s Council)

 • User involvement in designing supervision frameworks

 • Sharing information about the inspectorate to the public

 • Use patients as a source of information for planning and conducting theme based inspections

 • Interview adolescents represented in a youth council as part of theme based inspection

 • Young peer-inspectors in inspection team to interview young people

 • Experts-by-experiences (with learning disabilities) involved in the entire inspection process of theme based inspection

 • Experts-by-experience were trained and involved in inspections in elderly care homes

 • Mystery-guests with learning disabilities used in review of access of services (experts by experience show up in institutions under-cover and inform inspectors about their experiences)

 • Mystery guests used in reviews of elderly home care

 • Search social media to collect information about organizations as signal in risk based supervision

 • The ratings and reviews of an independent patient rating website are used by inspectors in identifying risks or themes or to prioritize their visits

Individual/reactive

Collective/reactive

 • Patient complaints

 • Regulatory requirement for involvement of patient/next of kin in incident investigation

 • Contact next of kin after sentinel events to identify if they have been involved in the required investigation by the healthcare organization

 • Inspecting of how healthcare organizations involve patient and next of kin in incident investigation

 • Aggregated information from complaints on sector and themes is used in risk based supervision for agenda setting and prioritization

 • Text mining research is performed to find relevant topics in complaints