Table 2 The questions answered by the parents before and after the procedure

Background information

• Child study number ^a

• Relationship with the child: Mother / Father / Other

• Does the child have a diagnosis yet? Yes / No

• If the child has a diagnosis already, is the disease a: Short term disease / Long term disease / No diagnosis yet

• Have you visited this children’s hospital before? Yes / No

• Are you familiar with the child’s upcoming procedure? Yes / No

• Has your child undergone the upcoming procedure before? Yes / No

Emotions and expectations

• How is your child feeling about the procedure in your opinion? E.g. happy, relieved, nervous, frustrated … ^a

• How are you feeling about the upcoming procedure? ^a

• What expectations do you have for the procedure? ^a

• On a scale from 1 to 5, are you currently feeling uncertainty, fear or nervousness towards your child’s sickness or disease? ^b

Background information

• Child study number ^a

• Relationship with the child: Mother / Father / Other

Emotions, fluency of the procedure and fluency of the hospital day

• On a scale from 1 to 5, how well did the procedure go as a whole from your point of view?^c

• On a scale from 1 to 5, how well did the procedure meet your expectations? ^c

• What is your topmost feeling at the moment? ^a

• On a scale from 1 to 5, are you currently feeling uncertainty, fear or nervousness towards your child’s sickness or disease? ^b

• Open feedback on the study or the hospital day ^a