Table 1 Characteristics of study participants

Age: median (range)

At diagnosis

19 (16–24) years

At interview

20 (17–26) years

Gender, male: n (%)

14 (78%)

Ethnicity: n (%)

White British

14 (78%)

Non-white British

2 (11%)

White non-British

2 (11%)

Education/employment at diagnosis: n (%)

Employment / work-based training

6 (33%)

School / college

6 (33%)

Undergraduate studies

3 (17%)

Not in education / employment

3 (17%)

Diagnosis: n (%)^a

Bone sarcoma

6 (33%)

Leukaemia

4 (22%)

Germ cell tumour

3 (17%)

Other sarcoma

2 (11%)

Lymphoma

1 (6%)

CNS tumour

1 (6%)

Melanoma

1 (6%)

Diagnostic type: n (%)

Primary cancer

16 (89%)

Relapsed cancer

2 (11%)

Place of care: n (%)^a

Adult hospital with AYA unit

14 (78%)

Paediatric hospital with AYA unit

3 (17%)

Adult hospital without AYA unit

1 (6%)

Reported enrolment in a trial: n (%)

5 (28%)

Interviewed independently of caregiver(s): n (%)

14 (78%)

Relationship to AYA: n (%)

Mother

11 (73%)

Father

3 (20%)

Partner

1 (7%)

Ethnicity: n (%)

White British

14 (93%)

Non-white British

1 (7%)

Own occupation at AYA’s diagnosis: n (%)

Professional

8 (53%)

Semi-professional / Skilled

6 (40%)

Unskilled

1 (7%)