Skip to main content

Table 1 Characteristics of study participants

From: The challenges of making informed decisions about treatment and trial participation following a cancer diagnosis: a qualitative study involving adolescents and young adults with cancer and their caregivers

AYA with cancer (n = 18)
Age: median (range)At diagnosis19 (16–24) years
At interview20 (17–26) years
Gender, male: n (%) 14 (78%)
Ethnicity: n (%)White British14 (78%)
Non-white British2 (11%)
White non-British2 (11%)
Education/employment at diagnosis: n (%)Employment / work-based training6 (33%)
School / college6 (33%)
Undergraduate studies3 (17%)
Not in education / employment3 (17%)
Diagnosis: n (%)aBone sarcoma6 (33%)
Leukaemia4 (22%)
Germ cell tumour3 (17%)
Other sarcoma2 (11%)
Lymphoma1 (6%)
CNS tumour1 (6%)
Melanoma1 (6%)
Diagnostic type: n (%)Primary cancer16 (89%)
Relapsed cancer2 (11%)
Place of care: n (%)aAdult hospital with AYA unit14 (78%)
Paediatric hospital with AYA unit3 (17%)
Adult hospital without AYA unit1 (6%)
Reported enrolment in a trial: n (%) 5 (28%)
Interviewed independently of caregiver(s): n (%) 14 (78%)
Caregivers (n = 15)
Relationship to AYA: n (%)Mother11 (73%)
Father3 (20%)
Partner1 (7%)
Ethnicity: n (%)White British14 (93%)
Non-white British1 (7%)
Own occupation at AYA’s diagnosis: n (%)Professional8 (53%)
Semi-professional / Skilled6 (40%)
Unskilled1 (7%)
  1. aPercentages do not sum to 100% due to rounding