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Table 4 Distribution of informal caregiving by Barthel index (per capita annual hour average)

From: Economic burden of Huntington’s disease in Peru

  Barthel 1 Barthel 2 Barthel 3 Barthel 4 Barthel 5
PC SC Total % PC SC Total % PC SC Total % PC SC Total % PC SC Total %
Personal hygiene & dressing 321 364 685 10.3% 546 0 546 8.8% 506 105 611 12.5% 49 26 76 3.0% 5 0 5 0.6%
Bathing or showering 191 104 295 4.4% 61 0 61 1.0% 305 56 361 7.4% 44 12 56 2.2% 11 0 11 1.2%
Feeding 546 364 910 13.6% 364 0 364 5.9% 283 20 303 6.2% 64 11 75 2.9% 0 0 0 0.0%
Functional mobility 485 121 606 9.1% 2275 0 2275 36.7% 541 1 542 11.1% 106 44 150 5.9% 22 0 22 2.4%
TOTAL Basic ADL 1543 953 2496 37.4% 3246 0 3246 52.3% 1635 182 1817 37.1% 263 93 356 13.9% 38 0 38 4.2%
Preparing meals 768 364 1132 17.0% 455 0 455 7.3% 940 172 1112 22.7% 375 85 461 18.0% 197 11 208 22.9%
Doctor consultations & medical test 128 0 128 1.9% 18 0 18 0.3% 26 1 27 0.6% 42 5 47 1.8% 55 7 62 6.8%
Managing medication/nursery 708 243 950 14.2% 228 0 228 3.7% 95 12 107 2.2% 77 12 89 3.5% 32 24 56 6.2%
Housework 711 0 711 10.7% 520 0 520 8.4% 522 6 528 10.8% 247 42 289 11.3% 159 6 165 18.1%
Moving within the community 52 0 52 0.8% 5 0 5 0.1% 16 3 19 0.4% 40 14 54 2.1% 57 24 81 8.9%
Shopping 208 0 208 3.1% 137 0 137 2.2% 69 10 79 1.6% 64 15 79 3.1% 6 11 17 1.8%
Financial or administrative management 32 0 32 0.5% 0 0 0 0.0% 1 1 1 0.0% 3 0 3 0.1% 2 0 2 0.2%
Social or recreational activities 24 0 24 0.4% 0 0 0 0.0% 154 3 157 3.2% 66 44 110 4.3% 104 34 138 15.2%
TOTAL Instrumental ADL 2631 607 3237 48.5% 1363 0 1363 21.9% 1823 208 2031 41.5% 914 218 1132 44.3% 612 117 729 80.2%
Surveillance & supervision 938 0 938 14.1% 1233 364 1597 25.7% 749 300 1049 21.4% 796 270 1066 41.7% 99 42 141 15.6%
TOTAL 5111 1560 6671 100.0% 5842 364 6206 100.0% 4207 690 4897 100.0% 1973 581 2554 100.0% 749 159 908 100.0%
  1. PC primary caregiver; SC secondary caregiver