Skip to main content

Table 4 Distribution of informal caregiving by Barthel index (per capita annual hour average)

From: Economic burden of Huntington’s disease in Peru

 

Barthel 1

Barthel 2

Barthel 3

Barthel 4

Barthel 5

PC

SC

Total

%

PC

SC

Total

%

PC

SC

Total

%

PC

SC

Total

%

PC

SC

Total

%

Personal hygiene & dressing

321

364

685

10.3%

546

0

546

8.8%

506

105

611

12.5%

49

26

76

3.0%

5

0

5

0.6%

Bathing or showering

191

104

295

4.4%

61

0

61

1.0%

305

56

361

7.4%

44

12

56

2.2%

11

0

11

1.2%

Feeding

546

364

910

13.6%

364

0

364

5.9%

283

20

303

6.2%

64

11

75

2.9%

0

0

0

0.0%

Functional mobility

485

121

606

9.1%

2275

0

2275

36.7%

541

1

542

11.1%

106

44

150

5.9%

22

0

22

2.4%

TOTAL Basic ADL

1543

953

2496

37.4%

3246

0

3246

52.3%

1635

182

1817

37.1%

263

93

356

13.9%

38

0

38

4.2%

Preparing meals

768

364

1132

17.0%

455

0

455

7.3%

940

172

1112

22.7%

375

85

461

18.0%

197

11

208

22.9%

Doctor consultations & medical test

128

0

128

1.9%

18

0

18

0.3%

26

1

27

0.6%

42

5

47

1.8%

55

7

62

6.8%

Managing medication/nursery

708

243

950

14.2%

228

0

228

3.7%

95

12

107

2.2%

77

12

89

3.5%

32

24

56

6.2%

Housework

711

0

711

10.7%

520

0

520

8.4%

522

6

528

10.8%

247

42

289

11.3%

159

6

165

18.1%

Moving within the community

52

0

52

0.8%

5

0

5

0.1%

16

3

19

0.4%

40

14

54

2.1%

57

24

81

8.9%

Shopping

208

0

208

3.1%

137

0

137

2.2%

69

10

79

1.6%

64

15

79

3.1%

6

11

17

1.8%

Financial or administrative management

32

0

32

0.5%

0

0

0

0.0%

1

1

1

0.0%

3

0

3

0.1%

2

0

2

0.2%

Social or recreational activities

24

0

24

0.4%

0

0

0

0.0%

154

3

157

3.2%

66

44

110

4.3%

104

34

138

15.2%

TOTAL Instrumental ADL

2631

607

3237

48.5%

1363

0

1363

21.9%

1823

208

2031

41.5%

914

218

1132

44.3%

612

117

729

80.2%

Surveillance & supervision

938

0

938

14.1%

1233

364

1597

25.7%

749

300

1049

21.4%

796

270

1066

41.7%

99

42

141

15.6%

TOTAL

5111

1560

6671

100.0%

5842

364

6206

100.0%

4207

690

4897

100.0%

1973

581

2554

100.0%

749

159

908

100.0%

  1. PC primary caregiver; SC secondary caregiver