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Table 1 Data collection methods

From: The emotional labour of quality improvement work in end of life care: a qualitative study of Patient and Family Centred Care (PFCC) in England

Methods

Data collected

Qualitative interviews with staff Phase one sites

Total number of interviews 17

Number of sites 4

Visits completed to two sites (including 16 face to face interviews)

One site telephone interview

One site no response (data drawn from interviews with Point of Care Foundation team and documents)

Observations of events

Total number of events observed 12

Observations of all learning events in phase 1 (8 observations)

Observation of celebration events (2 observations)

Observation of events for scale up sites (2 observations)

Qualitative interviews with four remaining sites

Telephone interviews with all sites (4 interviews)

Focus groups with sites

One focus group completed, One teleconference call

Document review

Over 700 documents in the database, documenting all stages of the program, Sorted in to the batches of: key correspondences, program set up, financing, administration, application processes, training resources, performance and program outcome data.

Patient accounts

1 completed

Interviews with coaches involved in scale up phase

5 telephone interviews

Observations of scale up phase site visits

1 completed

Interviews with staff at the scale up phase sites

4 telephone interviews, 2 informal interviews

Interviews with Point of Care Foundation PFCC team

4 completed