Table 4 Patient-reported experiences on information need and involvement in care decision making

a) Your cancer disease?

n = 154

n = 1909

 - Yes, had enough information

87.0

89.3

 - Lacked a little information

9.1

7.2

 - Lacked a lot of information

2.6

1.2

 - Had too much information

0.6

0.6

 - Not relevant

0.6

1.7

b) Your treatment option(s)?

n = 142

n = 1791

 - Yes, had enough information

83.1

86.2

 - Lacked a little information

12.7

8.9

 - Lacked a lot of information

3.5

1.8

 - Had too much information

0.0

0.4

 - Not relevant

0.7

2.7

c) Which complications may occur after operation?

n = 149

n = 1772

 - Yes, had enough information

81.2

75.2

 - Lacked a little information

10.7

12.0

 - Lacked a lot of information

4.0

4.9

 - Had too much information

0.7

0.1

 - Not relevant

3.4

7.8

d) Which side effects of medicine may occur?

n = 148

n = 1784

 - Yes, had enough information

69.4

70.3

 - Lacked a little information

14.2

9.4

 - Lacked a lot of information

6.1

4.3

 - Had too much information

0.0

0.8

 - Not relevant

10.1

15.2

8. Were you sufficiently involved in treatment decisions?^*

n = 128

n = 1670

 - Sufficiently involved

79.7

80.1

 - Involved too much

3.1

6.3

 - Involved too little

17.2

13.6

9. Have you ever doubted whether your treatment was the right treatment for you?

n = 152

n = 1865

 - No, not at all

62.5

75.0

 - To a lesser extent

8.6

9.0

 - Yes, to some extent

15.8

8.5

 - Yes, to a great extent

12.5

6.7

 - Not relevant

0.7

0.9

a) Treated you like a whole person and were not just interested in your disease?

n = 149

n = 1821

 - Yes, all of them

52.3

64.5

 - Yes, most of them

36.2

23.6

 - Some of them

8.1

8.4

 - No, none of them

1.3

1.4

 - Don’t know

2.0

2.1

b) Took time to understand what was important for you?

n = 148

n = 1746

 - Yes, all of them

50.0

55.8

 - Yes, most of them

34.5

26.6

 - Some of them

11.5

11.1

 - No, none of them

3.4

2.2

 - Don’t know

0.7

4.3