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Table 2 Main daily tasks of caregivers (extracted from verbatim)

From: The experience of patients and family caregivers during hospital-at-home in France

Caregivers Main daily tasks
C1 Clinical monitoring of the patient night and days (and of the technical equipment)
Change of work schedule to help the patient (very early in the morning, alternating work with C2 so someone is always present)
Help to move the patient (Carrying and accompanying the patient: toilets, shower..)
Replacement of dirty sheets
Cooking for the patient
Accompaniment of the patient outside and to the hospital
Daily organization
Management of medical appointments
Coordination between hospital and HAH
Management of medical emergencies (coordination between HAH/ambulances and accompaniment to the ER)
Management of the paperwork
Moral support
C2 Clinical monitoring of the patient night and days (and of the technical equipment)
Change of work schedule to help the patient (very late in the evening, alternating with C1 so someone is always present)
Help to move the patient (Carrying and accompanying the patient: toilets, shower..)
Accompaniment of the patient outside and to the hospital
Daily organization
Management of medical emergencies (coordination with HAH/ambulances and accompaniment to the ER)
Moral support
C3 Management of the paperwork
Coordination with the hospital, management of the medical appointment and of the transfers to the hospital and back
Accompaniment of the patient outside
Daily organization
Takes part to the nursing care
Carrying the patient (toilets, shower)
Moral support
C4 Accompaniment of the patient to the hospital
Preparation of the daily equipment used for nursing care
Clinical monitoring
Moral support
C5 Sleeps on the couch because of the medical bed
Cleaning of the house
Accompaniment of the patient to the hospital
Carrying of the patient
Presence and participation during the nursing care
Moral support
C6 Participation to the patient’s hygiene
Participation to the nursing care
Daily preparation of the pillbox
Coordination with the hospital (appointments, prescriptions) and between the hospital and HAH
Management of the patient’s transfers to the hospital and back
Management of the meals
Moral support
C7 Management of medical emergencies (coordination with HAH/ambulances and accompaniment to the ER)
Carrying the patient
Drives the patient to appointments
Participation to nursing care
Daily preparation of the medications
Moral support
C8 Management of technical emergencies
Participation to nursing care
Management of daily organization
Change of work schedule to help the patient (comes back to prepare lunch and stopped all external activities to be home)
Clinical monitoring of the patient and equipment
Moral support
C9 Daily shopping and meal preparation
Accompaniment of the patient to the hospital
Moral support
C10 Daily organization
Accompaniment of the patient to the hospital
Moral support
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