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Table 1 Experts i.e. informal caregivers’ characteristics and people with NCD characteristics

From: Neurocognitive disorders: what are the prioritized caregiver needs? A consensus obtained by the Delphi method

 

n = 68

Gender - n (%)

 female

46 (67.5%)

Relationship with their relative- n (%)

 spouses

43 (63.0%)

 children

20 (29.5%)

 other

5 (7.5%)

Age – mean ± SD

69.1 ± 12.0

 age of spouses – mean ± SD

75.3 ± 8.5

 age of children – mean ± SD

56.0 ± 7.1

 age ≥ 65 – n (%)

42 (62%)

Educational level - n (%)

 nil

5 (7.5%)

 primary

9 (13.0%)

 secondary

33 (48.5%)

 tertiary

21 (31.0%)

Cohabitation with their relative - n (%)

 yes

49 (72.0%)

Length of caregiving - n (%)

 

  < 1 year

12 (17.5%)

 1–5 year(s)

48 (70.5)

  > 5 years

8 (12.0%)

 Caregiver Burden (short ZBI) – mean ± SD

3.7 ± 1.9

People with NCD characteristics

 Age – mean ± SD

80.0 ± 8.0

 Gender - n (%)

  Female

35 (51.5%)

 Measurements - mean ± SD

 Mini-Mental State Examination

17.4 ± 6.2

 Neuropsychiatric Inventory

21.8 ± 14.8

 Instrumental Activities of Daily Living

3.0 ± 2.8

 Disability Assessment of Dementia DAD-16

5.3 ± 5.8

Diagnosis stage - n (%)

 Subjective cognitive decline

4 (6.0%)

 Minor neurocognitive disorders

15 (22.0%)

 Major neurocognitive disorders

49 (72.0%)

Diagnosis etiology - n (%)

 Alzheimer’s Disease

38 (56.0%)

 Alzheimer’s Disease with cerebrovascular disease

12 (17.5%)

 Lewy body disease

4 (6.0%)

 Cerebrovascular disease

5 (7.0%)

 Other neurocognitive disorders

9 (13.5%)

  1. ZBI Zarit Burden Index