Skip to main content

Table 2 Sociodemographic data, health status and satisfaction with care of the study participants responding to the CSQ-4 (n = 948; %)

From: Quality of health care in adolescents and adults with disorders/differences of sex development (DSD) in six European countries (dsd-LIFE)

Variable Categories Turner syndrome (TS) Klinefelter syndrome (KS) Congenital adrenal hyperplasia (CAH) Female XY-DSD Male XY-DSD Total
Age p50 [p25; p75] 29 [21; 43] 37 [27; 51] 29 [21, 38] 26.5 [21; 36.5] 22 [18; 29] 29 [21; 41]
Education Low 40 (15.33) 53 (30.64) 40 (21.05) 29 (16.67) 26 (31.33) 188 (21.34)
Medium 130 (49.81) 94 (54.34) 100 (52.63) 76 (43.68) 36 (43.37) 436 (49.49)
High 91 (34.87) 26 (15.03) 50 (26.32) 69 (39.66) 21 (25.30) 257 (29.17)
Feeling about household income Finding it (very) difficult to live on present income 35 (14.29) 29 (17.26) 30 (16.22) 19 (11.11) 8 (14.04) 121 (14.65)
Coping with present income 113 (46.12) 83 (49.40) 78 (42.16) 73 (42.69) 31 (54.39) 378 (45.76)
Living comfortably on present income 97 (39.59) 56 (33.33) 77 (41.62) 79 (46.20) 18 (31.58) 327 (39.59)
Health status Very bad 1 (0.36) 4 (1.9) 4 (1.9) 3 (1.63) 0 (0) 12 (1.27)
Bad 8 (2.87) 22 (11.64) 11 (5.21) 11 (5.98) 13 (15.29) 65 (6.86)
Fair 80 (28.67) 61 (32.28) 62 (29.38) 45 (24.46) 23 (27.06) 271 (28.59)
Good 167 (59.86) 85 (44.97) 102 (48.34) 90 (48.91) 36 (42.35) 480 (50.63)
Very good 23 (8.24) 17 (8.99) 32 (15.17) 35 (19.02) 13 (15.29) 120 (12.66)
Satisfaction with care CSQ4 p50 [p25; p75] 14 (12; 15) 13 (11; 15) 14 (12; 15) 13 (11; 15) 13 (11; 15) 13 (12; 15)
YHC-SF total satisfaction 56 (47; 75) 53 (42; 75) 61 (50; 83) 58 (42; 81) 53 (47; 75) 56 (47; 75)
YHC-SF info satisfaction 50 (50; 75) 50 (33; 75) 58 (50; 75) 50 (38; 75) 50 (33; 75) 50 (42; 75)
YHC-SF care satisfaction 50 (50; 75) 50 (42; 75) 58 (50; 83) 58 (42; 83) 50 (50; 75) 50 (50; 75)
YHC-SF doctor satisfaction 58 (50; 75) 58 (50; 75) 75 (50; 92) 67 (50; 83) 67 (50; 83) 67 (50; 83)
  1. Differences between diagnostic groups: age (Test for difference in median) p = 0.000; education (Pearson chi2 (8) = 42.3919), Pr = 0.000; income (Pearson chi2(8) = 9.5527), Pr = 0.298; general health (Pearson chi2(16) = 50.6480) Pr = 0.000; global satisfaction with care CSQ4 (Test for difference in median) p = 0.022; YHC-SF total satisfaction p = 0.209; YHC-SF info satisfaction p = 0.189; YHC-SF care satisfaction p = 0.049; YHC-SF doctor satisfaction p = 0.265
\