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Table 3 Change in paid and unpaid activities across CFS/ME specialist services

From: Specialist treatment of chronic fatigue syndrome/ME: a cohort study among adult patients in England

   A B C D E F H I J K Overall
Paid work (employed/self-employed) since attending CFS/ME service There has been no change in my employment situation 58.7% (27/46) 34.8% (8/23) 42.9% (9/21) 37.5% (9/24) 40.0% (30/75) 45.1% (23/51) 37.0% (20/54) 53.9% (14/26) 60.8% (31/51) 70.6% (12/17) 47.2% (186/394)
I have been able to return to work or increase my hours 13.0% (6/46) 26.1% (6/23) 19.1% (4/21) 16.7% (4/24) 14.7% (11/75) 19.6% (10/51) 29.6% (16/54) 15.4% (4/26) 11.8% (6/51) 11.8% (2/17) 18.0% (71/394)
I have stopped working or reduced my hours because of CFS/ME 23.9% (11/46) 39.1% (9/23) 23.8% (5/21) 33.3% (8/24) 36.0% (27/75) 31.4% (16/51) 31.5% (17/54) 26.9% (7/26) 27.5% (14/51) 17.7% (3/17) 30.0% (118/394)
I have stopped working or reduced my hours for other reasons 4.4% (2/46) 0.0% (0/23) 14.3% (3/21) 12.5% (3/24) 9.3% (7/75) 3.9% (2/51) 1.9% (1/54) 3.9% (1/26) 0.0% (0/51) 0.0% (0/17) 4.8% (19/394)
Education or training since attending CFS/ME service There has been no change in my college/university attendance 90.3% (28/31) 100.0% (9/9) 73.7% (14/19) 66.7% (10/15) 70.7% (29/41) 73.0% (27/37) 74.1% (20/27) 85.7% (12/14) 93.6% (29/31) 80.0% (8/10) 78.8% (189/240)
I have been able to return to education/training or increase my hours 6.5% (2/31) 0.0% (0/9) 5.3% (1/19) 6.7% (1/15) 0.0% (0/41) 10.8% (4/37) 3.7% (1/27) 0.0% (0/14) 0.0% (0/31) 0.0% (0/10) 4.6% (11/240)
I have stopped attending or reduced my hours because of CFS/ME 3.2% (1/31) 0.0% (0/9) 10.5% (2/19) 20.0% (3/15) 24.4% (10/41) 13.5% (5/37) 14.8% (4/27) 14.3% (2/14) 3.2% (1/31) 20.0% (2/10) 12.9% (31/240)
I have stopped attending or reduced my hours for other reasons 0.0% (0/31) 0.0% (0/9) 10.5% (2/19) 6.7% (1/15) 4.9% (2/41) 2.7% (1/37) 7.4% (2/27) 0.0% (0/14) 3.2% (1/31) 0.0% (0/10) 3.8% (9/240)
Unpaid work and domestic tasks (childcare, housework, voluntary work, driving, cooking, cleaning, etc.) since attending CFS/ME service My ability to do unpaid work and domestic tasks has not changed 25.6% (11/43) 30.0% (6/20) 36.4% (8/22) 30.4% (7/23) 27.7% (18/65) 30.6% (15/49) 34.6% (18/52) 30.8% (8/26) 28.0% (14/50) 25.0% (4/16) 29.3% (109/372)
I have been able to do more unpaid work and domestic tasks 48.8% (21/43) 30.0% (6/20) 27.3% (6/22) 26.1% (6/23) 24.6% (16/65) 38.8% (19/49) 38.5% (20/52) 26.9% (7/26) 34.0% (17/50) 43.8% (7/16) 34.7% (129/372)
I do less unpaid work and/or fewer tasks because of CFS/ME 23.3% (10/43) 40.0% (8/20) 31.8% (7/22) 44.6% (29/23) 44.6% (29/65) 26.5% (13/49) 26.9% (14/52) 42.3% (11/26) 38.0% (38/50) 25.0% (4/16) 34.1% (127/372)
I do less unpaid work and/or fewer tasks for other reasons 2.3% (1/43) 0.0% (0/20) 4.6% (1/22) 0.0% (0/23) 3.1% (2/65) 4.1% (2/49) 0.0% (0/52) 0.0% (0/26) 0.0% (0/50) 6.3% (1/16) 1.9% (7/372)
Social and leisure activities (going out, inviting people over, hobbies, gardening, travel, exercise, etc.) since attending CFS/ME service My ability to do social & leisure activities has not changed 21.3% (10/47) 21.7% (5/23) 27.3% (6/22) 40.0% (8/20) 21.9% (16/73) 35.2% (19/54) 25.4% (15/59) 23.1% (6/26) 25.5% (13/51) 18.8% (3/16) 25.7% (102/397)
I have been able to do more social & leisure activities 46.8% (22/47) 43.5% (10/23) 27.3% (6/22) 20.0% (4/20) 28.8% (21/73) 35.2% (19/54) 40.7% (24/59) 30.8% (8/26) 29.4% (15/51) 43.8% (7/16) 35.0% (139/397)
I do fewer social & leisure activities because of CFS/ME 29.8% (14/47) 34.8% (8/23) 27.3% (6/22) 40.0% (8/20) 45.2% (33/73) 27.8% (15/54) 28.8% (17/59) 46.2% (12/26) 45.1% (23/51) 31.3% (5/16) 36.0% (143/397)
I do fewer social & leisure activities for other reasons 2.1% (1/47) 0.0% (0/23) 18.2% (4/22) 0.0% (0/20) 4.1% (3/73) 1.9% (1/54) 5.1% (3/59) 0.0% (0/26) 0.0% (0/51) 6.3% (1/16) 3.3% (13/397)