Table 3 Change in paid and unpaid activities across CFS/ME specialist services
From: Specialist treatment of chronic fatigue syndrome/ME: a cohort study among adult patients in England
A | B | C | D | E | F | H | I | J | K | Overall | ||
|---|---|---|---|---|---|---|---|---|---|---|---|---|
Paid work (employed/self-employed) since attending CFS/ME service | There has been no change in my employment situation | 58.7% (27/46) | 34.8% (8/23) | 42.9% (9/21) | 37.5% (9/24) | 40.0% (30/75) | 45.1% (23/51) | 37.0% (20/54) | 53.9% (14/26) | 60.8% (31/51) | 70.6% (12/17) | 47.2% (186/394) |
I have been able to return to work or increase my hours | 13.0% (6/46) | 26.1% (6/23) | 19.1% (4/21) | 16.7% (4/24) | 14.7% (11/75) | 19.6% (10/51) | 29.6% (16/54) | 15.4% (4/26) | 11.8% (6/51) | 11.8% (2/17) | 18.0% (71/394) | |
I have stopped working or reduced my hours because of CFS/ME | 23.9% (11/46) | 39.1% (9/23) | 23.8% (5/21) | 33.3% (8/24) | 36.0% (27/75) | 31.4% (16/51) | 31.5% (17/54) | 26.9% (7/26) | 27.5% (14/51) | 17.7% (3/17) | 30.0% (118/394) | |
I have stopped working or reduced my hours for other reasons | 4.4% (2/46) | 0.0% (0/23) | 14.3% (3/21) | 12.5% (3/24) | 9.3% (7/75) | 3.9% (2/51) | 1.9% (1/54) | 3.9% (1/26) | 0.0% (0/51) | 0.0% (0/17) | 4.8% (19/394) | |
Education or training since attending CFS/ME service | There has been no change in my college/university attendance | 90.3% (28/31) | 100.0% (9/9) | 73.7% (14/19) | 66.7% (10/15) | 70.7% (29/41) | 73.0% (27/37) | 74.1% (20/27) | 85.7% (12/14) | 93.6% (29/31) | 80.0% (8/10) | 78.8% (189/240) |
I have been able to return to education/training or increase my hours | 6.5% (2/31) | 0.0% (0/9) | 5.3% (1/19) | 6.7% (1/15) | 0.0% (0/41) | 10.8% (4/37) | 3.7% (1/27) | 0.0% (0/14) | 0.0% (0/31) | 0.0% (0/10) | 4.6% (11/240) | |
I have stopped attending or reduced my hours because of CFS/ME | 3.2% (1/31) | 0.0% (0/9) | 10.5% (2/19) | 20.0% (3/15) | 24.4% (10/41) | 13.5% (5/37) | 14.8% (4/27) | 14.3% (2/14) | 3.2% (1/31) | 20.0% (2/10) | 12.9% (31/240) | |
I have stopped attending or reduced my hours for other reasons | 0.0% (0/31) | 0.0% (0/9) | 10.5% (2/19) | 6.7% (1/15) | 4.9% (2/41) | 2.7% (1/37) | 7.4% (2/27) | 0.0% (0/14) | 3.2% (1/31) | 0.0% (0/10) | 3.8% (9/240) | |
Unpaid work and domestic tasks (childcare, housework, voluntary work, driving, cooking, cleaning, etc.) since attending CFS/ME service | My ability to do unpaid work and domestic tasks has not changed | 25.6% (11/43) | 30.0% (6/20) | 36.4% (8/22) | 30.4% (7/23) | 27.7% (18/65) | 30.6% (15/49) | 34.6% (18/52) | 30.8% (8/26) | 28.0% (14/50) | 25.0% (4/16) | 29.3% (109/372) |
I have been able to do more unpaid work and domestic tasks | 48.8% (21/43) | 30.0% (6/20) | 27.3% (6/22) | 26.1% (6/23) | 24.6% (16/65) | 38.8% (19/49) | 38.5% (20/52) | 26.9% (7/26) | 34.0% (17/50) | 43.8% (7/16) | 34.7% (129/372) | |
I do less unpaid work and/or fewer tasks because of CFS/ME | 23.3% (10/43) | 40.0% (8/20) | 31.8% (7/22) | 44.6% (29/23) | 44.6% (29/65) | 26.5% (13/49) | 26.9% (14/52) | 42.3% (11/26) | 38.0% (38/50) | 25.0% (4/16) | 34.1% (127/372) | |
I do less unpaid work and/or fewer tasks for other reasons | 2.3% (1/43) | 0.0% (0/20) | 4.6% (1/22) | 0.0% (0/23) | 3.1% (2/65) | 4.1% (2/49) | 0.0% (0/52) | 0.0% (0/26) | 0.0% (0/50) | 6.3% (1/16) | 1.9% (7/372) | |
Social and leisure activities (going out, inviting people over, hobbies, gardening, travel, exercise, etc.) since attending CFS/ME service | My ability to do social & leisure activities has not changed | 21.3% (10/47) | 21.7% (5/23) | 27.3% (6/22) | 40.0% (8/20) | 21.9% (16/73) | 35.2% (19/54) | 25.4% (15/59) | 23.1% (6/26) | 25.5% (13/51) | 18.8% (3/16) | 25.7% (102/397) |
I have been able to do more social & leisure activities | 46.8% (22/47) | 43.5% (10/23) | 27.3% (6/22) | 20.0% (4/20) | 28.8% (21/73) | 35.2% (19/54) | 40.7% (24/59) | 30.8% (8/26) | 29.4% (15/51) | 43.8% (7/16) | 35.0% (139/397) | |
I do fewer social & leisure activities because of CFS/ME | 29.8% (14/47) | 34.8% (8/23) | 27.3% (6/22) | 40.0% (8/20) | 45.2% (33/73) | 27.8% (15/54) | 28.8% (17/59) | 46.2% (12/26) | 45.1% (23/51) | 31.3% (5/16) | 36.0% (143/397) | |
I do fewer social & leisure activities for other reasons | 2.1% (1/47) | 0.0% (0/23) | 18.2% (4/22) | 0.0% (0/20) | 4.1% (3/73) | 1.9% (1/54) | 5.1% (3/59) | 0.0% (0/26) | 0.0% (0/51) | 6.3% (1/16) | 3.3% (13/397) |