Skip to main content

Table 2 Item characteristics of the first full model using all 35 PCC items (n = 464)

From: Validation of an instrument to assess the delivery of patient-centred care to people with intellectual disabilities as perceived by professionals

Item

Valid n

Missing

Mean

sd

Patients’ preferences

  1.

Healthcare professionals treat clients with dignity and respect

463

1(0.2%)

4.31

.66

  2.

Healthcare is focused on improving the quality of life of clients

463

1(0.2%)

3.91

.83

  3.

Healthcare professionals take client’s preferences into account

463

1(0.2%)

3.91

.71

 4.

Healthcare professionals involve clients in decisions regarding their care

460

4(0.9%)

3.21

1.02

 5.

Clients are supported to set and achieve their own treatment goals

456

8(1.7%)

3.18

1.12

Physical comfort

  6.

Healthcare professionals pay attention to pain management

453

11(2.4%)

3.50

1.14

  7.

Healthcare professionals take client’s preferences for support with their daily living needs into account

462

2(0.4%)

3.90

.86

 8.

Clients’ areas are clean and comfortable

441

23(5.0%)

3.19

.91

  9.

Clients have privacy

460

4(0.9%)

3.29

1.02

Coordination of care

  10.

Healthcare professionals are well-informed; clients need to tell their story only once

453

11(2.4%)

3.31

.84

  11.

Care is well-coordinated between professionals

464

0 (0.0%)

3.50

.82

 12.

Clients know who is coordinating their care

451

13(2.8%)

3.65

1.17

 13.

Clients have a first point of contact who knows everything about their condition and treatment

459

5(1.1%)

3.94

1.04

  14.

Healthcare professionals work as a team in care delivery to clients

462

2(0.4%)

4.10

.87

Emotional support

  15.

Healthcare professionals pay attention to client’s anxiety about their situation

421

43(9.3%)

3.99

.88

  16.

Healthcare professionals involve relatives in the emotional support of the client

456

8(1.7%)

3.61

.96

  17.

Healthcare professionals pay attention to client’s anxiety over the impact of their illness on their loved ones (if applicable)

375

89(19.2%)

3.30

1.16

Access to care

  18.

The building is accessible to all clients

458

6(1.3%)

4.03

1.00

  19.

Clear directions are provided to and inside the building

447

17(3.7)

3.16

1.25

  20.

It is easy to schedule an appointment

461

3(0.6%)

3.28

1.01

 21.

Waiting times for an appointment are acceptable

457

7(1.5%)

3.25

.95

 22.

Language is not a barrier for access to care

453

11(2.4%)

2.93

1.28

Continuity and transition

  23.

When a client is transferred to another ward, relevant patient information is transferred as well

459

5(1.1%)

3.33

1.04

  24.

Clients who are transferred are well-informed about where they are going, what care they will receive and who will be their contact person

440

24(5.2%)

3.55

1.00

  25.

Clients get skilled advice about care and support at home after discharge

432

32(6.9%)

3.46

1.03

Information and education

 26.

Clients are well-informed about all aspects of their care

435

29(6.3%)

3.21

.98

  27.

Clients can access their care records

406

58(12.5%)

2.87

1.47

  28.

Clients are in charge of their own care

444

20(4.3%)

2.93

1.10

  29.

Healthcare professionals support clients to be in charge of their care

451

13(2.8%)

3.41

1.02

 30.

There is open communication between clients and healthcare professionals

449

15(3.2%)

3.83

.94

 31.

Healthcare professionals have good communication skills

464

0 (0.0%)

3.72

.77

Family and friends

 32.

Accommodation for relatives is provided

413

51(11.0%)

1.43

.81

  33.

Healthcare professionals involve relatives in decisions regarding the patient’s care

462

2(0.4%)

4.11

.91

  34.

Healthcare professionals pay attention to loved ones in their role as carer for the client

461

3(0.6%)

3.91

.89

  35.

Healthcare professionals pay attention to the needs of family and friends of the client

455

9(1.9%)

3.66

.92

  1. Items in bold are included in the short version