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Table 2 Item characteristics of the first full model using all 35 PCC items (n = 464)

From: Validation of an instrument to assess the delivery of patient-centred care to people with intellectual disabilities as perceived by professionals

Item Valid n Missing Mean sd
Patients’ preferences
1. Healthcare professionals treat clients with dignity and respect 463 1(0.2%) 4.31 .66
2. Healthcare is focused on improving the quality of life of clients 463 1(0.2%) 3.91 .83
3. Healthcare professionals take client’s preferences into account 463 1(0.2%) 3.91 .71
 4. Healthcare professionals involve clients in decisions regarding their care 460 4(0.9%) 3.21 1.02
 5. Clients are supported to set and achieve their own treatment goals 456 8(1.7%) 3.18 1.12
Physical comfort
6. Healthcare professionals pay attention to pain management 453 11(2.4%) 3.50 1.14
7. Healthcare professionals take client’s preferences for support with their daily living needs into account 462 2(0.4%) 3.90 .86
 8. Clients’ areas are clean and comfortable 441 23(5.0%) 3.19 .91
9. Clients have privacy 460 4(0.9%) 3.29 1.02
Coordination of care
10. Healthcare professionals are well-informed; clients need to tell their story only once 453 11(2.4%) 3.31 .84
11. Care is well-coordinated between professionals 464 0 (0.0%) 3.50 .82
 12. Clients know who is coordinating their care 451 13(2.8%) 3.65 1.17
 13. Clients have a first point of contact who knows everything about their condition and treatment 459 5(1.1%) 3.94 1.04
14. Healthcare professionals work as a team in care delivery to clients 462 2(0.4%) 4.10 .87
Emotional support
15. Healthcare professionals pay attention to client’s anxiety about their situation 421 43(9.3%) 3.99 .88
16. Healthcare professionals involve relatives in the emotional support of the client 456 8(1.7%) 3.61 .96
17. Healthcare professionals pay attention to client’s anxiety over the impact of their illness on their loved ones (if applicable) 375 89(19.2%) 3.30 1.16
Access to care
18. The building is accessible to all clients 458 6(1.3%) 4.03 1.00
19. Clear directions are provided to and inside the building 447 17(3.7) 3.16 1.25
20. It is easy to schedule an appointment 461 3(0.6%) 3.28 1.01
 21. Waiting times for an appointment are acceptable 457 7(1.5%) 3.25 .95
 22. Language is not a barrier for access to care 453 11(2.4%) 2.93 1.28
Continuity and transition
23. When a client is transferred to another ward, relevant patient information is transferred as well 459 5(1.1%) 3.33 1.04
24. Clients who are transferred are well-informed about where they are going, what care they will receive and who will be their contact person 440 24(5.2%) 3.55 1.00
25. Clients get skilled advice about care and support at home after discharge 432 32(6.9%) 3.46 1.03
Information and education
 26. Clients are well-informed about all aspects of their care 435 29(6.3%) 3.21 .98
27. Clients can access their care records 406 58(12.5%) 2.87 1.47
28. Clients are in charge of their own care 444 20(4.3%) 2.93 1.10
29. Healthcare professionals support clients to be in charge of their care 451 13(2.8%) 3.41 1.02
 30. There is open communication between clients and healthcare professionals 449 15(3.2%) 3.83 .94
 31. Healthcare professionals have good communication skills 464 0 (0.0%) 3.72 .77
Family and friends
 32. Accommodation for relatives is provided 413 51(11.0%) 1.43 .81
33. Healthcare professionals involve relatives in decisions regarding the patient’s care 462 2(0.4%) 4.11 .91
34. Healthcare professionals pay attention to loved ones in their role as carer for the client 461 3(0.6%) 3.91 .89
35. Healthcare professionals pay attention to the needs of family and friends of the client 455 9(1.9%) 3.66 .92
  1. Items in bold are included in the short version