Table 3 Quality of life: Impact on emotional/mental health
Quote no. | Quote |
|---|---|
Quality of life: Impact on physical health | |
1. | “The extreme tiredness is very hard to cope with.”(P315) |
2. | “Feel tired even when asymptomatic. This affects my working ability and it would be very helpful to receive some sort of financial help like a tax credit or small benefit so I could always work 4 days a week without struggling.”(P412) |
3. | “The fatigue that is debilitating and under estimated.” (P61) |
4. | “My life has went on hold since diagnosis. Either because of pain or fatigue I have been unable to go on holiday, and worse still, my work has been hugely affected with long absences…”(P169) |
Quality of life: Impact on social health | |
5. | “Can be difficult when out for day and have to join queue for toilet-if use disable one can get dagger looks from other people who are me judging me as they don't realise what it is like as I do not look any different .” (P5) |
6. | “I have lost 3 years of an important stage in my life to Crohn's and it has affected my friendships, my family and my education. “(P50) |
7. | “Also feel quite fed up about having IBD because of travelling issues and being anxious about needing the toilet and having access to a toilet. The fear never goes away and you are always on the alert for where the nearest toilet is even if you hardly ever have to go urgently. “(P136) |
Quality of life: Impact on occupational health | |
8. | “It's very difficult and I worry a lot about not being able to work and pay my mortgage. Was refused benefit when I was off for around 6 months the last time.” (P41) |
9. | “It isn't easy. Struggling more with working as I get older and coping with IBD.” (P102) |
10. | “It is a constant struggle to get any welfare when not able to work. I have worked since I was 16 and paid my way but never there when I need it adding to stress levels” (P168) |