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Table 2 Overview on data at the individual patient level: constructs and operationalizations

From: Influence of quality of care and individual patient characteristics on quality of life and return to work in survivors of the acute respiratory distress syndrome: protocol for a prospective, observational, multi-centre patient cohort study (DACAPO)




Socio-demographic characteristics

age, gender


living situation, presence of informal caregiver(s), marital status




educational and professional level, employment


subjective social status

MacArthur-Scale [23]

General medical characteristics

height, weight, waist circumference


history of smoking, current smoking



according to SAPS III [32]

history of psychiatric disorders


Medical characteristics relating to ARDS and its treatment

cause and severity of ARDS

according to the “Berlin-Definition” [15]

prognostic scores at ICU admission

SAPS II [31], SAPS III [32]

organ dysfunction/failure

SOFA [33]

blood gas analysis


ventilation parameters


presence of delirium


treatment with supportive care measures: ECMO, NO-inhalation, prone-positioning, muscle relaxant medication, tracheotomy




length of ICU stay


Characteristics of health institution use

length of hospital stay before referral to specialized centre, duration of inter-hospital transport, length and type of rehabilitative measures


outpatient health-service use


Psycho-social characteristics

prevalence of psychopathological syndromes: major depressive syndrome, panic syndrome, PTSD, alcohol abuse

PHQ [26], PTSS-14 [28, 29]


Barthel-Index of Activities of Daily Living [42, 43]

social support

F-SOZU [30]

healthrelated quality of life

SF-12 [21]

return to work

  1. Notes: bold: moderators and main outcomes