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Table 2 Overview on data at the individual patient level: constructs and operationalizations

From: Influence of quality of care and individual patient characteristics on quality of life and return to work in survivors of the acute respiratory distress syndrome: protocol for a prospective, observational, multi-centre patient cohort study (DACAPO)

  Constructs/concepts Score/instrument
Socio-demographic characteristics age, gender  
living situation, presence of informal caregiver(s), marital status  
nationality  
educational and professional level, employment  
subjective social status MacArthur-Scale [23]
General medical characteristics height, weight, waist circumference  
history of smoking, current smoking  
comorbidity according to SAPS III [32]
history of psychiatric disorders  
Medical characteristics relating to ARDS and its treatment cause and severity of ARDS according to the “Berlin-Definition” [15]
prognostic scores at ICU admission SAPS II [31], SAPS III [32]
organ dysfunction/failure SOFA [33]
blood gas analysis  
ventilation parameters  
presence of delirium CAM-ICU, RASS [41]
treatment with supportive care measures: ECMO, NO-inhalation, prone-positioning, muscle relaxant medication, tracheotomy  
complications  
length of ICU stay  
Characteristics of health institution use length of hospital stay before referral to specialized centre, duration of inter-hospital transport, length and type of rehabilitative measures  
outpatient health-service use  
Psycho-social characteristics prevalence of psychopathological syndromes: major depressive syndrome, panic syndrome, PTSD, alcohol abuse PHQ [26], PTSS-14 [28, 29]
disability Barthel-Index of Activities of Daily Living [42, 43]
social support F-SOZU [30]
healthrelated quality of life SF-12 [21]
return to work  
  1. Notes: bold: moderators and main outcomes