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Table 2 Average annual costs per CF patient (2012, in €)

From: Social and economic costs and health-related quality of life in non-institutionalised patients with cystic fibrosis in the United Kingdom

  Total (n = 74) With carer (n = 33) Without carer (n = 41)
  Mean ±SD Median Mean ±SD Median Mean ±SD Median
Direct Health Care Costs
 Prescription medication 7,053.3 (4,737.1) 9,233.3 7,737.3 (4,619.3) 9,795.4 6,502.8 (4,815.3) 8,498.5
 Tests 2,865.3 (4,463.7) 1,547.8 2,447.5 (4,124.2) 1,000.3 3,201.5 (4,742.9) 1,866.0
 Outpatient & primary health care visits 3,823.3 (4,214.8) 2,513.7 4,224.1 (5,136.4) 2,526.5 3,500.7 (3,328.0) 2,454.2
 Acute hospitalisation 6,759.1 (12,532.9) 802.8 9,208.4 (15,590.6) 3,211.4 4,787.7 (9,125.3) 0
 Medical devices 287.8 (878.8) 98.7 271.2 (1,007.8) 98.7 301.3 (772.3) 98.7
 Health care transportation 64.9 (506.4) 0 131.6 (755.7) 0 11.3 (67.8) 0
 Subtotal 20,853.7 (21,336.6) 15,247.4 24,020.0 (26,057.9) 15,756.2 18,305.2 (16,513.4) 14,282.2
Direct Non Health Care Costs
 Non-health care transportation 34.7 (55.6) 15.5 29.6 (32.1) 17.3 38.8 (69.2) 13.8
 Social services 46.8 (298.4) 0 35 (200.9) 0 56.3 (360.6) 0
 Caregiver time costs (informal care) 21,446.6 (34,034.7) 0 48,092.4 (36,345.7) 38,047.1 0 0 0
 Main caregivers 16,323.2 (23,713.8) 0 36,603.5 (22,744.6) 34,831.9 0 0 0
 Secondary caregivers 5,123.4 (14,701.3) 0 11,488.8 (20,435.9) 1,286.1 0 0 0
 Subtotal 21,528.1 (34,020.5) 123.4 48,156.9 (36,336.1) 38,047.1 95.1 (366.5) 13.8
 Total Direct Costs (Direct Health Care Costs & Direct Non Health Care Costs) 42,381.8 (41,307.4) 28,254.6 72,176.9 (43,522.5) 65,806.9 18,400.4 (16,635.9) 14,370.3
Loss of Labour Productivity          
 Sick leave 1,805.2 (7,264.1) 0 132.4 (760.4) 0 3,151.7 (9,574.4) 0
 Early retirement 4,416.3 (11,248.8) 0 3,961.3 (10,831.6) 0 4,782.6 (11,694.5) 0
 Subtotal 6,221.6 (12,772.6) 0 4,093.7 (10,808.3) 0 7,934.3 (14,054.6) 0
 TOTAL COSTS 48,603.4 (43,789.6) 34,883.3 76,270.6 (46,073.4) 70,640.8 26,334.6 (25,719.2) 16,591.4