Table 2 Average annual costs per CF patient (2012, in €)

 Prescription medication

7,053.3

(4,737.1)

9,233.3

7,737.3

(4,619.3)

9,795.4

6,502.8

(4,815.3)

8,498.5

 Tests

2,865.3

(4,463.7)

1,547.8

2,447.5

(4,124.2)

1,000.3

3,201.5

(4,742.9)

1,866.0

 Outpatient & primary health care visits

3,823.3

(4,214.8)

2,513.7

4,224.1

(5,136.4)

2,526.5

3,500.7

(3,328.0)

2,454.2

 Acute hospitalisation

6,759.1

(12,532.9)

802.8

9,208.4

(15,590.6)

3,211.4

4,787.7

(9,125.3)

0

 Medical devices

287.8

(878.8)

98.7

271.2

(1,007.8)

98.7

301.3

(772.3)

98.7

 Health care transportation

64.9

(506.4)

0

131.6

(755.7)

0

11.3

(67.8)

0

 Subtotal

20,853.7

(21,336.6)

15,247.4

24,020.0

(26,057.9)

15,756.2

18,305.2

(16,513.4)

14,282.2

 Non-health care transportation

34.7

(55.6)

15.5

29.6

(32.1)

17.3

38.8

(69.2)

13.8

 Social services

46.8

(298.4)

0

35

(200.9)

0

56.3

(360.6)

0

 Caregiver time costs (informal care)

21,446.6

(34,034.7)

0

48,092.4

(36,345.7)

38,047.1

0

0

0

 Main caregivers

16,323.2

(23,713.8)

0

36,603.5

(22,744.6)

34,831.9

0

0

0

 Secondary caregivers

5,123.4

(14,701.3)

0

11,488.8

(20,435.9)

1,286.1

0

0

0

 Subtotal

21,528.1

(34,020.5)

123.4

48,156.9

(36,336.1)

38,047.1

95.1

(366.5)

13.8

 Total Direct Costs (Direct Health Care Costs & Direct Non Health Care Costs)

42,381.8

(41,307.4)

28,254.6

72,176.9

(43,522.5)

65,806.9

18,400.4

(16,635.9)

14,370.3

Loss of Labour Productivity

 Sick leave

1,805.2

(7,264.1)

0

132.4

(760.4)

0

3,151.7

(9,574.4)

0

 Early retirement

4,416.3

(11,248.8)

0

3,961.3

(10,831.6)

0

4,782.6

(11,694.5)

0

 Subtotal

6,221.6

(12,772.6)

0

4,093.7

(10,808.3)

0

7,934.3

(14,054.6)

0

 TOTAL COSTS

48,603.4

(43,789.6)

34,883.3

76,270.6

(46,073.4)

70,640.8

26,334.6

(25,719.2)

16,591.4