Number of clients | Â | ADRD | PD | MS | TBI | Epilepsy | CP | ALS | MD | SCI | HD | Stroke | None | Any |
---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
112,533 | 20,547 | 6,427 | 6,329 | 5,806 | 2,026 | 1,504 | 743 | 266 | 479 | 91,869 | 330,184 | 211,331 | ||
Primary Informal CG (%) | Lives with client | 56.1 | 64.9 | 66.6 | 58.1 | 56.9 ns | 62.6 | 80.0 | 71.2 | 59.4 ns | 68.5 | 58.1 | 52.2 | 57.1 |
Relationship of Primary CG (%) | Child/child-in-law | 54.2 | 41.5 | 20.1 | 32.7 | 27.9 | 4.1 | 23.1 | 13.3 | 19.6 | 23.3 | 50.3 | 47.2 | 49.3 |
Spouse | 33.8 | 46.8 | 51.2 | 35.1 | 29.2 | 9.2 | 63.0 | 34.9 | 42.1 | 49.5 | 35.6 | 31.6 | 35.0 | |
Other Relative | 8.0 | 7.0 | 19.4 | 23.2 | 31.1 | 74.9 | 8.4 | 44.3 | 24.4 | 19.9 | 8.6 | 13.0 | 10.4 | |
Friend/Neighbor | 4.0 | 4.6 | 9.2 | 9.0 | 11.8 | 11.8 | 5.4 | 7.5 | 13.9 | 7.3 | 5.6 | 8.2 | 5.4 | |
Secondary CG (%) | Present | 75.8 | 74.0 | 63.8 | 68.1 | 67.9 | 67.4 | 69.5 ns | 59.0 ns | 54.1 | 68.5 ns | 73.9 | 68.3 | 73.9 |
Primary Informal CG: Areas of Help (%) | ADLs | 53.0 | 59.5 | 57.6 | 48.2 | 49.0 | 61.4 | 75.5 | 62.2 | 51.9 | 59.8 | 51.5 | 39.3 | 51.8 |
IADLs | 92.3 | 92.3 | 89.4 ns | 87.7 | 87.5 | 86.1 | 95.3 | 91.1 ns | 88.4 ns | 90.6 ns | 91.6 | 88.4 | 91.5 | |
Informal Help – Last 7 days (%) | 0–7 h | 16.3 | 15.0 | 20.9 | 23.7 | 27.5 | 29.1 | 7.0 | 20.7 | 31.4 ns | 19.5 | 18.2 | 26.4 | 18.2 |
8–14 h | 20.0 | 18.3 | 19.6 | 21.5 | 20.8 | 12.7 | 11.5 | 16.3 | 19.3 ns | 15.6 | 22.4 | 29.2 | 21.3 | |
15–21 h | 24.1 | 24.8 | 25.4 | 22.6 | 21.2 | 17.0 | 23.4 | 23.3 | 22.1 ns | 20.3 | 26.0 | 26.2 | 25.1 | |
22+ Hours | 39.6 | 41.8 | 34.1 | 32.3 | 30.5 | 41.2 | 58.1 | 39.7 | 27.2 ns | 44.6 | 33.4 | 18.3 | 35.5 | |
Mean (std) Extent of Informal Help - Last 7 Days | Hours | 28.2 (29.6) | 28.3 (27.5) | 24.0 (24.5) | 24.9 (28.9) | 24.2 (28.9) | 31.2 (33.7) | 40.2 (33.4) | 27.8 (28.0) | 20.9 ns (24.6) | 29.3 (29.1) | 24.2 (25.9) | 16.3 (19.0) | 25.6 (27.5) |
Client or CG feel client better living elsewhere (%) | Client Only | 1.0 | 2.0 | 3.6 | 3.1 | 2.5 ns | 3.5 | 2.3 | 2.6 | 4.5 | 1.3 | 2.0 | 2.4 | 1.7 |
Caregiver Only | 32.4 | 12.9 | 4.5 | 11.7 | 10.4 ns | 6.0 | 4.9 | 2.6 | 1.9 | 18.0 | 12.0 | 4.9 | 20.4 | |
Client and Caregiver | 15.2 | 19.4 | 10.5 | 13.4 | 12.3 ns | 8.3 | 12.8 | 8.6 | 9.0 | 27.8 | 14.4 | 10.4 | 14.7 | |
Caregiver Distress (%) | Â | 35.3 | 29.5 | 19.2 ns | 25.6 | 20.7 | 19.7 ns | 29.7 | 19.0 ns | 16.5 ns | 36.7 | 22.8 | 13.4 | 28.0 |