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Table 3 Caregiver Characteristics (Total Study Sample)

From: Informal caregivers of clients with neurological conditions: profiles, patterns and risk factors for distress from a home care prevalence study

Number of clients

 

ADRD

PD

MS

TBI

Epilepsy

CP

ALS

MD

SCI

HD

Stroke

None

Any

112,533

20,547

6,427

6,329

5,806

2,026

1,504

743

266

479

91,869

330,184

211,331

Primary Informal CG (%)

Lives with client

56.1

64.9

66.6

58.1

56.9 ns

62.6

80.0

71.2

59.4 ns

68.5

58.1

52.2

57.1

Relationship of Primary CG (%)

Child/child-in-law

54.2

41.5

20.1

32.7

27.9

4.1

23.1

13.3

19.6

23.3

50.3

47.2

49.3

Spouse

33.8

46.8

51.2

35.1

29.2

9.2

63.0

34.9

42.1

49.5

35.6

31.6

35.0

Other Relative

8.0

7.0

19.4

23.2

31.1

74.9

8.4

44.3

24.4

19.9

8.6

13.0

10.4

Friend/Neighbor

4.0

4.6

9.2

9.0

11.8

11.8

5.4

7.5

13.9

7.3

5.6

8.2

5.4

Secondary CG (%)

Present

75.8

74.0

63.8

68.1

67.9

67.4

69.5 ns

59.0 ns

54.1

68.5 ns

73.9

68.3

73.9

Primary Informal CG: Areas of Help (%)

ADLs

53.0

59.5

57.6

48.2

49.0

61.4

75.5

62.2

51.9

59.8

51.5

39.3

51.8

IADLs

92.3

92.3

89.4 ns

87.7

87.5

86.1

95.3

91.1 ns

88.4 ns

90.6 ns

91.6

88.4

91.5

Informal Help – Last 7 days (%)

0–7 h

16.3

15.0

20.9

23.7

27.5

29.1

7.0

20.7

31.4 ns

19.5

18.2

26.4

18.2

8–14 h

20.0

18.3

19.6

21.5

20.8

12.7

11.5

16.3

19.3 ns

15.6

22.4

29.2

21.3

15–21 h

24.1

24.8

25.4

22.6

21.2

17.0

23.4

23.3

22.1 ns

20.3

26.0

26.2

25.1

22+ Hours

39.6

41.8

34.1

32.3

30.5

41.2

58.1

39.7

27.2 ns

44.6

33.4

18.3

35.5

Mean (std) Extent of Informal Help - Last 7 Days

Hours

28.2 (29.6)

28.3 (27.5)

24.0 (24.5)

24.9 (28.9)

24.2 (28.9)

31.2 (33.7)

40.2 (33.4)

27.8 (28.0)

20.9 ns (24.6)

29.3 (29.1)

24.2 (25.9)

16.3 (19.0)

25.6 (27.5)

Client or CG feel client better living elsewhere (%)

Client Only

1.0

2.0

3.6

3.1

2.5 ns

3.5

2.3

2.6

4.5

1.3

2.0

2.4

1.7

Caregiver Only

32.4

12.9

4.5

11.7

10.4 ns

6.0

4.9

2.6

1.9

18.0

12.0

4.9

20.4

Client and Caregiver

15.2

19.4

10.5

13.4

12.3 ns

8.3

12.8

8.6

9.0

27.8

14.4

10.4

14.7

Caregiver Distress (%)

 

35.3

29.5

19.2 ns

25.6

20.7

19.7 ns

29.7

19.0 ns

16.5 ns

36.7

22.8

13.4

28.0

  1. ns - All tests across characteristics for those with the given condition versus those without are statistically significant (p < .05) unless otherwise noted