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Table 1 ‘Ingredients’ of person-centeredness as a dichotomy between experiences of absence and lack of ‘Space’

From: Wake up, wake up! It’s me! It’s my life!patient narratives on person-centeredness in the integrated care context: a qualitative study

  Absence of ‘Space’ Lack of ‘Space’
Holism My providers acknowledge me as a whole person My providers treat me as a set of clinical symptoms instead of a whole person
Naming My providers acknowledge me as a unique, named, equal, respected person, and treat me with respect and dignity; I am seen and heard I feel a ‘number’ instead of a named person; I feel unimportant, ignored, patronized, overlooked, unseen, unheard
Heed My providers listen and pay heed to me; they allow me enough time to be able to speak, to tell my unique story; they provide me with comprehensive clinical judgment. I am rushed to finish the appointment
Compassion My providers care for me authentically, warmly and compassionately My providers don’t really care about me
Agency and Empowerment I am involved in care, I am informed, in control, and able to make decisions. I feel a passive recipient of care
Continuity of care I see the same clinician every time each time I come; someone knows about me I can’t see the same clinician each time; nobody knows about me