Table 4 Quotes illustrating behaviours identified in interviews

We've been talking really just about the dementia, haven't we, really, not the full hog of Alzheimer's.

Patient interview 21 325-6

You mean the memory? Oh, I never thought of it as an illness."

Patient interview 23 215-6

Support needs

It's been three years now I think, so it's been horrible and it's on my mind all the time, all the time, there's not a day goes by where I don't think about it."

Patient interview 24 109-11

Role of carers

"I think at the time it would have probably been me that would have needed to sort of, emphasise maybe, that he, that if, that I could be expressing things to him in a way that would help him to understand, rather than the doctors who are, th-th they only see him once, twice, you know [mmm] don't see him very often."

Carer 22 162-6

"If she's getting information there it would be nice to know what she's getting because I'm the one that does the supporting in between whiles."

Carer 23 239-41

Need for a person-centred approach

This doctor, he was about fifteen feet away from me, and I heard him say 'Oh, just tell him he's had a stroke and he's got Alzheimers'.

Patient interview 24 37-39