Table 1 Variables and measures
CHARACTERISATION VARIABLES | |
|---|---|
1. Healthcare centre | |
2. Age | |
3. Patient and caregiver gender | |
4. Family relationship between patient and caregiver | 1. Spouse/2. Son-Daughter/3. Brother-sister/4. Others |
5. Home care delivery sub-programme which the subject belongs to | 1. Immobilised patients/2. Patients recently discharged form hospital requiring home care/3. Terminally ill patients/4. Caregiver for any of these patients |
6. Number of daily hours devoted to care by caregiver | < 1 hour/1–2 hours/3–5 hours/6–8 hours/10–20 hours/>20 hours (Thresholds from the Aged People Characteristics Study) |
7. Patient and caregiver's health problems | Classification of health problems from the National Health Survey |
8. Programme start and end dates | |
VARIABLES RELATED TO CLINICAL OUTCOMES AND QUALITY OF LIFE (DEPENDENTS): | |
1. Patient's functional capacity | Barthel and Lawton-Brody scales |
2. Caregiver burden | Zarit test |
3. Family role/function | APGAR family test |
4. Cognitive function | Pfeiffer test |
5. Quality of life | EUROQOL 5D |
6. Satisfaction | SATISFAD, specific questionnaire validated for assessment of satisfaction with home care services [38] |
7. Institutionalisation | |
8. Mortality | |
9. Management of therapeutic regimen | Nursing Outcomes Classification code 1813 [39] |
VARIABLES RELATED TO USE AND DELIVERY OF SERVICES (DEPENDENTS) | |
1. Hospital admissions | |
2. A&E visits | |
3. home visits by nurse | |
4. social worker interventions | |
5. physiotherapy sessions | |
6. caregiver visits to healthcare centre | |
7. patient visits to healthcare centre | |