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Table 1 Proposed English Regional methods for imparting newborn carrier results

From: Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges

Region SCD carriers Sceening started in CF carriers Screening started in
North West In person by purpose trained health visitor 2005 In person by purpose trained health visitor Not yet started at time of interview
West Midlands In person by Haemoglobinopathy counsellor
OR
Letter with result plus appointment for counselling
2004 In person specialist counsellor plus family health visitor Not yet started at time of interview
South West In person by family health visitor or Haemoglobinopathy counsellor
OR
Letter with result plus option to attend Haemoglobinopathy service
2004 – 2006 In person by genetic counsellor or antenatal screening co-ordinator Not yet started at time of interview
London In person by family health visitor or Haemoglobinopathy counsellor
OR
Letter with result plus appointment for counselling, or option to attend specialist service, or 'drop-in' clinic
1995 – 2005 Undecided at the time of data collection Not yet started at time of interview
North East In person by Haemoglobinopathy counsellor plus family health visitor 2005 In person by purpose trained health visitor plus family health visitor Not yet started at time of interview
East of England In person by Haemoglobinopathy counsellor or purpose trained health visitor
OR
Letter with result plus appointment for counselling
1997 – 2005 In person by specialist CF nurse 1980's in Cambridge-shire
South Eastern Haemoglobinopathy counsellors contact and inform parents (details on exact methods not collected) 2003 – 2006 In person by purpose trained midwife 2006 in Thames Valley
East Midlands In person by General Practitioner plus referral to clinical genetics or follow-up by Haemoglobinopathy counsellor 2004 In person by screening specialist nurse 1989
Yorkshire and Humber In person by purpose trained health visitor or Haemoglobinopathy counsellor
OR
Letter with result plus appointment for counselling
2004 In person by family health visitor plus specialist CF nurse or by family health visitor alone 1997 – 2007
1989 (South Yorkshire)