Table 1 Proposed English Regional methods for imparting newborn carrier results
Region | SCD carriers | Sceening started in | CF carriers | Screening started in |
|---|---|---|---|---|
North West | In person by purpose trained health visitor | 2005 | In person by purpose trained health visitor | Not yet started at time of interview |
West Midlands | In person by Haemoglobinopathy counsellor OR Letter with result plus appointment for counselling | 2004 | In person specialist counsellor plus family health visitor | Not yet started at time of interview |
South West | In person by family health visitor or Haemoglobinopathy counsellor OR Letter with result plus option to attend Haemoglobinopathy service | 2004 – 2006 | In person by genetic counsellor or antenatal screening co-ordinator | Not yet started at time of interview |
London | In person by family health visitor or Haemoglobinopathy counsellor OR Letter with result plus appointment for counselling, or option to attend specialist service, or 'drop-in' clinic | 1995 – 2005 | Undecided at the time of data collection | Not yet started at time of interview |
North East | In person by Haemoglobinopathy counsellor plus family health visitor | 2005 | In person by purpose trained health visitor plus family health visitor | Not yet started at time of interview |
East of England | In person by Haemoglobinopathy counsellor or purpose trained health visitor OR Letter with result plus appointment for counselling | 1997 – 2005 | In person by specialist CF nurse | 1980's in Cambridge-shire |
South Eastern | Haemoglobinopathy counsellors contact and inform parents (details on exact methods not collected) | 2003 – 2006 | In person by purpose trained midwife | 2006 in Thames Valley |
East Midlands | In person by General Practitioner plus referral to clinical genetics or follow-up by Haemoglobinopathy counsellor | 2004 | In person by screening specialist nurse | 1989 |
Yorkshire and Humber | In person by purpose trained health visitor or Haemoglobinopathy counsellor OR Letter with result plus appointment for counselling | 2004 | In person by family health visitor plus specialist CF nurse or by family health visitor alone | 1997 – 2007 1989 (South Yorkshire) |