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Table 1 Socio-demographic characteristics and health status of patients (N = 246) and family members (N = 194)

From: A decision exercise to engage cancer patients and families in Deliberation about Medicare Coverage for advanced Cancer Care

Characteristics Patient (N = 246) Caregiver (N = 194) Combined (N = 440)
Mean age ± SD b 73 ± 7.1 64 ± 10.7 69 ± 10.0
Gender b    
Female 120 (48.8) 138 (71.5) 258 (58.8)
Male 126 (51.2%) 55 (28.4%) 181 (41.1%)
Not Answered 0 (0.0%) 1 (0.5%) 1 (0.2%)
Race
Native American 6 (2.5) 2 (1.0) 8 (1.8)
African American 64 (26.3) 67 (34.9) 131 (30.1)
Caucasian 169 (69.5) 120 (62.5) 289 (66.4)
Other 4 (1.6) 3 (1.6) 7 (1.6)
Not Answered 3 (1.2%) 2 (1.0%) 5 (1.1%)
Ethnicity
Hispanic or Latino 2 (0.8) 1 (0.5) 3 (0.7)
Not Hispanic or Latino 219 (91.6) 167 (89.8) 386 (90.8)
Not Answered 25 (10.2%) 26 (13.4%) 51 (11.6%)
Marital status d
Married/live with a partner 171 (69.5) 151 (78.2) 322 (73.3)
Single or never married 6 (2.4) 9 (4.7) 15 (3.4)
Widowed/Divorced/Separated 69 (28.0) 32 (16.6) 101 (23.0)
Not Answered 0 (0.0%) 2 (1.0%) 2 (0.5%)
Relation to patient
Spouse   99 (51.6)  
Sibling 8 (4.2)  
Child 36 (18.8)  
Other 39 (20.3)  
Not Answered   12 (6.2%)  
Educational attainment d
Less than high school 20 (8.2) 9 (4.7) 29 (6.6)
High school graduate or GED 43 (17.6) 45 (23.3) 88 (20.1)
Some college 66 (27.0) 69 (35.8) 135 (30.9)
College graduate or more 114 (46.7) 70 (36.3) 184 (42.1)
Not Answered 3 (1.2%) 1 (0.5%) 4 (0.9%)
Household income
<20 K 39 (15.9) 27 (14.0) 66 (15.1)
20-39.9 K 49 (20.0) 32 (16.6) 81 (18.5)
40-59.9 K 48 (19.6) 46 (23.8) 94 (21.5)
60-79.9 K 49 (20.0) 34 (17.6) 83 (18.9)
80 + K 57 (23.3) 50 (25.9) 107 (24.4)
Not answered 4 (1.6%) 5 (2.6%) 9 (2.0%)
Health status a,b
Poor 8 (3.3) 0 8 (1.8)
Fair 50 (20.3) 16 (8.3) 66 (15.0)
Good 93 (37.8) 75 (38.9) 168 (38.3)
Very good 70 (28.5) 73 (37.8) 143 (32.6)
Excellent 24 (9.8) 29 (15.0) 53 (12.1)
Not answered 1 (0.4) 1 (0.5%) 2 (0.5%)
Cancer type (self reported) Deceased N (%)
Breast 43 (17.5)   2 (4.6)
Lung 38 (15.4) 10 (26.3)
Prostate 37 (15.0) 4 (10.8)
Other 26 (10.6) 6 (23.1)
Colon 17 (6.9)  
Lymphoma 14 (5.7)  
Bladder 11 (4.5)  
Pancreatic 11 (4.5)  
Head/Neck 7 (2.8)  
Ovarian 7 (2.8)  
Leukemia 6 (2.4)  
Multiple myeloma 6 (2.4)  
Endometrial 3 (1.2)  
Kidney 3 (1.2)  
Skin 3 (1.2)  
Brain 3 (1.2)  
Out-of pocket payments during the past 12 months
$0 11 (4.5) 6 (3.1) 17 (3.9)
<$500 20 (8.1) 37 (19.1) 57 (13.0)
$500 - < $2000 55 (22.4) 34 (17.5) 89 (20.2)
$2000 or more 124 (50.4) 95 (49.0) 219 (49.8)
Not Answered 36 (14.6) 22 (11.3) 58 (13.2)
  1. aHealth Status was a patient’s response to the question: “In general, would you say your health is:”
  2. bP < 0.001.
  3. cP < 0.01.
  4. dP < 0.05.