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Table 1 A summary of nine different CCE-related concepts that emerged through analysis of literature

From: Key concepts in consumer and community engagement: a scoping meta-review

Identified concepts related to CCE

Phrases used to describe each concept

Aim

Role of consumers and/or community members

Involvement of professionals

Shared decision making

Consumer involvement

Improving own health

Active participation in the process of decision making for their own conditions

Activity is a joint process involving health care providers

Consumer participation

Patient involvement

Patient participation

Patient preference

Shared decision making

Self-management: Participation of patients in their own medical treatment

Community-based intervention

Improving own health

Co-operating and active participation in their own health management

Activity is an action by consumers or community members

Community engagement

Community involvement

Community participation

Consumer engagement

Consumer involvement

Consumer participation

Patient activation

Patient-centred (care)

Patient-driven

Patient education

Patient engagement

Patient involvement

Patient participation

Self-care

Self-management

CCE in health care systems

Community engagement

Improving health in general

Active participation in health care systems

Activity is a joint process involving employees of health care systems

Community involvement

Community participation

Community wide interventions

Decision-making

Patient involvement

Public involvement

Community-based health promotion

Patient participation

Either improving own health or improving health in general

Active participation in actions leading to health promotion

Activity is an action by consumers or community members

Public engagement

Providing access to health care

Community-based (screening)

Improving own health

Recipient of health care

Activity is a joint process involving health care providers

Community demand

Community engagement

Community participation

Patient engagement

Patient participation

Rehabilitation: increasing social participation

Community-based rehabilitation

Improving own health

Active participation in social life

Activity is an action by consumers or community members

Community integration

Community involvement

Community participation

Person-centred (planning)

Patient participation

Social involvement

Social engagement

Social participation

Participation in research

Community-based (research)

Improving health in general

‘Recipient’ of research

Activity is a joint process involving researchers

Consumer participation

Patient recruitment

Collaboration in research design and conduct

Community-based (research)

Improving health in general

Active participation in the research design and conduct

Activity is a joint process involving researchers

Community engagement

Community involvement

Community participation

Consumer participation

Patient participation

Public involvement

Peer support: patients as health care providers

Community involvement

Improving health in general

Active participation in the care of other patients

Activity is an action by consumers or community members

Consumer-led services

Consumer participation

Consumer provider

Empowerment

Peer-led (interventions)

Peer services

Peer support