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Table 1 A summary of nine different CCE-related concepts that emerged through analysis of literature

From: Key concepts in consumer and community engagement: a scoping meta-review

Identified concepts related to CCE Phrases used to describe each concept Aim Role of consumers and/or community members Involvement of professionals
Shared decision making Consumer involvement Improving own health Active participation in the process of decision making for their own conditions Activity is a joint process involving health care providers
Consumer participation
Patient involvement
Patient participation
Patient preference
Shared decision making
Self-management: Participation of patients in their own medical treatment Community-based intervention Improving own health Co-operating and active participation in their own health management Activity is an action by consumers or community members
Community engagement
Community involvement
Community participation
Consumer engagement
Consumer involvement
Consumer participation
Patient activation
Patient-centred (care)
Patient-driven
Patient education
Patient engagement
Patient involvement
Patient participation
Self-care
Self-management
CCE in health care systems Community engagement Improving health in general Active participation in health care systems Activity is a joint process involving employees of health care systems
Community involvement
Community participation
Community wide interventions
Decision-making
Patient involvement
Public involvement
Community-based health promotion Patient participation Either improving own health or improving health in general Active participation in actions leading to health promotion Activity is an action by consumers or community members
Public engagement
Providing access to health care Community-based (screening) Improving own health Recipient of health care Activity is a joint process involving health care providers
Community demand
Community engagement
Community participation
Patient engagement
Patient participation
Rehabilitation: increasing social participation Community-based rehabilitation Improving own health Active participation in social life Activity is an action by consumers or community members
Community integration
Community involvement
Community participation
Person-centred (planning)
Patient participation
Social involvement
Social engagement
Social participation
Participation in research Community-based (research) Improving health in general ‘Recipient’ of research Activity is a joint process involving researchers
Consumer participation
Patient recruitment
Collaboration in research design and conduct Community-based (research) Improving health in general Active participation in the research design and conduct Activity is a joint process involving researchers
Community engagement
Community involvement
Community participation
Consumer participation
Patient participation
Public involvement
Peer support: patients as health care providers Community involvement Improving health in general Active participation in the care of other patients Activity is an action by consumers or community members
Consumer-led services
Consumer participation
Consumer provider
Empowerment
Peer-led (interventions)
Peer services
Peer support