Table 4 Characteristics of participating families
Families’ study identifier | Child’s age | Child’s sex | Child’s ethnicity | New clinical responsibilities by parent(s) |
|---|---|---|---|---|
1 | 8 | Boy | White British | Home dialysis. |
Parents had previous experience of home-based care-giving. | ||||
2 | 11 | Girl | White British | Home dialysis. |
Previous experience of home-based clinical care-giving. | ||||
3 | 12 | Girl | White British | Dietary restrictions, preparing for home dialysis. |
Previous experience of home-based clinical care-giving. | ||||
4 | 15 | Girl | South Asian | Understanding new condition, medication, diet, home dialysis. |
Little experience of home-based clinical care-giving. | ||||
5 | 3 | Girl | White British | Post transplant (e.g. fluids, medication, diet, NG tube feeds). |
Previous experience of home-based clinical care-giving. | ||||
6 | 5 months | Boy | White British | Understanding new diagnosis, fluid management, NG tube. Parents had little experience of home-based clinical care-giving. |