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Table 4 Characteristics of participating families

From: Multidisciplinary teams, and parents, negotiating common ground in shared-care of children with long-term conditions: A mixed methods study

Families’ study identifier Child’s age Child’s sex Child’s ethnicity New clinical responsibilities by parent(s)
1 8 Boy White British Home dialysis.
Parents had previous experience of home-based care-giving.
2 11 Girl White British Home dialysis.
Previous experience of home-based clinical care-giving.
3 12 Girl White British Dietary restrictions, preparing for home dialysis.
Previous experience of home-based clinical care-giving.
4 15 Girl South Asian Understanding new condition, medication, diet, home dialysis.
Little experience of home-based clinical care-giving.
5 3 Girl White British Post transplant (e.g. fluids, medication, diet, NG tube feeds).
Previous experience of home-based clinical care-giving.
6 5 months Boy White British Understanding new diagnosis, fluid management, NG tube. Parents had little experience of home-based clinical care-giving.